With EoE, Allergies, Asthma and a G-Tube


Tinleigh is something else. Her one month check up was great she was 50% on everything and growing fine. The screaming though was horrible. It wasn’t like colic where it was some hours one time a day, it was 24/7. When we would have her in public people would make comments on how cute she was and the boys would respond “she cries all the time”. It was weighing on all of us. If she would have been my first baby I would have been done! The doctor started her on zantac. She was spitting up and you could actually smell the acid. So we hoped that would help. Two weeks went by and there was a little less screaming but not much. The doctor then added prevacid. Tinleigh was also covered in a rash. It came with her baby acne. Started on her face and head and got really bad. It then started spreading down her back and chest. Then finally went down her arms and legs. Once it started on her arms and legs her face and head was starting to clear up. So then I thought maybe she had some sort of virus and it was just exiting her body through her extremities. Made sense in my head.
At her 2 month appointment I was shocked to learn she had only gained 7oz instead of the expected 2 pounds. The doctor was very upset about this and mentioned seeing the GI doctor. I didn’t want to go there yet. The pediatrician also wanted to get her on a prescription formula. I had gone round with the insurance when we tried to get the boys the prescription formula two years ago. I told her I didn’t want to do that so she said she wanted to see Tinleigh in two weeks for a weight check. If she didn’t gain an oz a day then we were going to the next steps of the GI doctor and prescription formula. I left that appointment determined to fatten this baby up. I was going to nurse her every 3 hours even if she wasn’t acting hungry round the clock. Then a good friend reminded me to try rice cereal in her bottle. How could I have forgotten about that with reflux babies? I had done it with both of the boys. I also removed diary from my diet. By the time it was time to weigh her again she was a different baby. The crying became less and the spit up was now minimal as long as she had the rice in her bottle. When I took her in for her weight check she had gained 12oz in 14 days. Good enough! My next problem was that I wasn’t making enough breast milk to keep up with her at this point. I tried alimentum for allergy babies. She screamed and vomited it right up after only having 2oz. The doctor said she needs the prescription formula. I asked about trying soy. The doctor said no way, she feared Tinleigh would have allergies like the boys and didn’t even want me to try soy. We were getting no where with getting coverage for the prescription formula and I couldn’t even get a sample of it to see if it agreed with her. So I bought prosobee. I only gave her an ounce at first. Nothing happened. So as she wanted more I gave her more. She is still on soy! No issues.
During this time I had also cut wheat out of my diet to see if her rash would clear up. Low and behold it did! Why wheat? Just a gut feeling. So I have now joined the rest of my family with a restricted diet. Darn is it hard. Nathan did make a point one evening about it. He told me it’s actually harder for me because I’ve been eating wheat and dairy my entire life. He’s never had chicken and has no idea what he’s missing so he never craves it. I accepted his pity.
Tinleigh is now a happy baby and steadily gaining weight. I nurse her on one side while pumping the other. I add rice to the pumped and feed her that after she’s done nursing. If she’s still hungry after that then she gets soy formula mixed with rice. Somedays she wants 4oz of soy after breast milk some days she only wants an ounce. I believe I only produce a little around 3 ounces a feeding for her. She’s on a combo of zantac and prilosec and it works for her. Her skin looks great. She does get the occasional pimple on her face but nothing like she had before.

January 18, 2012 Posted by | LIVING | , , , , , , | Leave a comment


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