LIVING

With EoE, Allergies, Asthma and a G-Tube

Scopes x4

We scheduled all four kids to be scoped on the same day. Our crew filled the 4 spots the hospital would do that day.

The night before we made the 3 hour drive to the hotel. We set up a formula bar.camera 081Fed everyone a snack and attempted to settle in for the night. IMG_0724Layton luckily went right to sleep in her pack’n’play. Tinleigh slept with mom and I. Nathan and the boys took the pull out couch. I think Nathan got the short end of the stick as I noticed Gage basically slept on top of him all night.

We had to get up bright and early. I tried to keep track of the times things happened and do a blog post that way, it ended up too crazy for me to keep going back to log things in.

Here’s as far as I got

4:30am up and at em
4:37 i put my makeup on by the light of the microwavecamera 090
4:45 mom broke her diamond necklace in the dark hotel room and the diamond flew off
5:00 woke up kids
5:15 found missing diamond
5:30 headed to hospital
5:50 checked in all 4 kidscamera 099
6:20 got called back to our roomphoto 2
7:15 Layton got loopy medscamera 098
7:35 Layton went back
8:05 Tinleigh got loopy meds
8:10 Laytons done
Tinleigh went back
Gage got meds
9:07 Gage went back

After this I wasn’t able to keep a log. Once Gage went back Layton came out. Mom and I headed down to be with her and could hear her yelling as we rounded the corner. I knew I had another little Tinleigh on my hands. We walked into her curtain area where one of the nurses was trying to hold her as she screamed and tried to wiggle away. She was fired up. I noticed something in her mouth. I quickly asked what it was. The nurse said a goldfish cracker. WHAT?! I said don’t those have dairy in them? I don’t usually buy them because my other kids are allergic to them. The nurse looked at me and said no it’s just wheat. We scooped the cracker out of her mouth anyways, they handed her to me and then they all left. I grabbed the bag of crackers and sure enough there’s milk in the crackers. I looked down at Layton and right there around her ankle is her little allergy bracelet with one work on it: MILK. I was pissed and nervous all at the same time. I was trying to calm her down, watch for any signs of a reaction and trying to figure out in my head how to handle this situation with the nurses. Her regular nurse came in and I told her in a calm manner the crackers do have milk in them. I then told her if this would have been Tinleigh she would be having an anaphylactic reaction. The nurse went and said something to the pacu nurses about their mistake. I left it at that. Luckily Layton was fine. I called the patient advocate line the next day and took care of the situation. photo 5I then asked the nurse for a glucose bottle for Layton in hopes it would calm her. That’s what always worked for Tinleigh. Sure enough it worked for Layton as well. Layton didn’t like the heart monitors, her IV or the blood pressure cuff. She just wanted it all off. So we keep giving her little bottles of water and turned on the tv. I was able to keep her a little more calm until it was time to unhook her from everything. Once she was finally calm Tinleigh came rolling into our recovery bay. photo 4Tinleigh has a history of waking up crazy mad. The doctor now gives her a little something to calm her down. It works like a charm. She woke up happy and mellow this time. She saw Layton’s little bottle and instantly wanted one too. She may be 3-1/2 but if it keeps her happy then so be it. We entertained the girls for a while and then Gage came out. photo 3We propped him up in a chair and he was quiet and content. Didn’t want bothered only wanted some sprite. Layton was starting to want to run around by this point. So we found a wagon and took the girls for rides up and down the hall. It was still early in the morning and we were the only ones in the whole recovery area. photo 1(1)Finally Charlie came out. We propped him up in a chair as well.camera 171They boys sat drinking sprite and watching tv.  No one got sick. No one threw a fit, except Layton. It was a good day for scopes. The doctor came and spoke to us once everyone was done. Everything appeared good in each of them. Tinleigh had one little spot that looked like small ulcer so they biopsied it. Other than that all the inflammation was down. We know not to get our hopes up because that doesn’t always mean they’re eosinophil clear but it is a good sign that things could be better. We left the hospital by 12:30. We were all exhausted but it was over, we did it.

Friday afternoon I got a call from the doctor. Results were in. I felt numb. She asked who I wanted first. Layton of course! Guess what Layton scoped clear! She may also start on dairy. I couldn’t believe my ears. I think I’m still in shock. Does this mean she’s cleared for life? No, not really. She is on all food at this point in time and is scoping clear. It could flare in the future. We’ll pray that she doesn’t. Charlie was 4 before he started having issues and he was on a regular diet until that point. Let’s think positive though. IMG_0737Next up were Charlie’s results. He was clear all the way through. There were no more eosinophils in his belly either. We had removed soy and started him on reflux medication. The eosionphils in his lower esophagus were gone also. So we will keep him on the meds and off of soy going forward. Even though he doesn’t show any allergic reactions to soy his skin and blood test for soy are huge. So in this case allergy testing does work for him trying to figure out EoE. Charlie is going to trial beef next. He hasn’t had beef since he was 4 and that was the food that set everything into action for him as far as allergies and EoE go. He can only eat pork and fish right now and really needs another protein. Chicken is a trigger and he keeps testing positive to shellfish so beef it is. Fingers crossed he doesn’t have an allergic reaction. camera 039

Gage’s scope was better. All of his inflammation and furrowing were gone. So the removal of corn helped clear things up. However, he was still showing 10/12 eosinophils in some areas. Gage has always had a lower number of eosiophils since having a feeding tube. The highest it’s ever been though is a 9. We don’t want to see these numbers in a steady climb. Cauliflower was the only thing he was trialing. I mentioned to our doctor he has been complaining of his throat burning. So we are going to let Gage keep cauliflower and start him on reflux meds. We are hoping maybe he has some reflux going on and this is why he’s showing low numbers of eosinophils. We will let him take the meds for 2 weeks before letting him start a new trial. His new trial will be broccoli and watermelon. We will scope him at the end of July. photo 1

Tinleigh failed her food trial this time around. Although she didn’t have any visual signs of EoE her numbers were 10/20. So we have to remove bananas and squash from her diet. The doctor is letting Tinleigh keep Enjoy Life Chocolate chips because they are just cocoa. We are going to pull these 2 foods from her diet for two weeks then she will trial oranges and sweet potatoes. Tinleigh will get scoped at the same time as Gage.

For both Tinleigh and Gage if they have high numbers at their next scope we will have to dial things back and get them to a clear scope before we can continue to move forwards. So i’m really praying things straighten out for them these next two months.

We’re very happy with how things are going for the kids.  A little sad Tinleigh has to take away bananas and squash but she still gets to move forward. It’s all just part of how crazy this disease is.

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May 30, 2015 Posted by | LIVING | , , , , , , , , , , , , , , , | 1 Comment

Something’s fishy

It’s been a great summer. The only epi pens used were on Nathan. That’s just stubborn him going out to lunch where he probably shouldn’t.

We attempted a triple scope day this summer. Couldn’t have gone better. 20130815_142150The results of that day is where we are now.

20130815_160458

Charlie was clear. We had removed chicken from his diet. That did the trick. So his only meat was pork. We decided to give fish a try. He had never had it and went both ways on allergy testing for it. After a four-hour food challenge at the allergist’s office we are happy to announce Charlie is trialing fish! He LOVES Gorton’s fish sticks. I love how easy they are.IMG_20130930_105929

Gage’s scope results from that day were wonderful as well. Gage is now up to seven foods: blueberries, rice, strawberries,lemon, cocoa, tapioca and green beans. We really wanted to add a protein to Gage’s diet. The only thing we had left was fish. So after a negative blood test he did the same four-hour fish challenge at the allergist’s office. Let’s briefly touch on what happens at a challenge with such a highly allergic food. I bring the fish of choice ready to go. They first do a skin prick test with the fish that I bring in. Next they rub fish on his lips and leave it sit for 15 min. In the mean time I’m sitting there watching him like a hawk making sure there are no hives, coughs, itches or anything that looks like a reaction. They then have him try to hold a little piece in his mouth for 15 minutes. After that, they give him bites to eat every 15 minutes. Each bite increases in size double of the previous bite. Each bigger bite results in my nerves climbing through the roof wondering “is this the bite that will set him off into a reaction?” It’s very exciting each time we hear the timer go off, no sign of a reaction and they come in with another bite. Very exciting for a little guy who loves to go fishing but has never had the pleasure of tasting it. The mom side of this is absolutely nerve-wracking. Imagine feeding your child something you have done your best for the last 5 years to keep away from him. Lots of praying went on in that room. There were no tears allowed. It was Gage’s exciting day, this mom wasn’t going to ruin it for him. I’m not sure how I made it through that day, or Charlie’s. I did though, and so did they. Now they both get to eat fish. Gage doesn’t get to enjoy the Gorton’s fish sticks. However, I have found a wonderful rice flour based tempura I can use to make him fish nuggets. He loves them.  I love that he loves them.IMG_20130924_165944

The results of that scope for Tinleigh were horrible. On the highest dose of steroids she was still very inflamed and with high eosinophil counts. So we removed the last of the grains and meats which were rice, oats and pork. Our hopes were to get her to  drink more elemental formula. The pressure was on. I managed to start getting 26-28 oz a day down her. Which was great because with not much left for her to eat I couldn’t figure out what to feed her. Then she caught a cold and started throwing her cups of formula back at me saying YUCK!! Now she will only drink the unflavored mixed with some coconut milk in her bed in a bottle. Don’t worry, we’ve seen the dentist and her teeth are fine. We recently had her scoped again. Results were confusing, she had less than one in the mid and upper esophagus. Her lower esophagus was actually worse than last time, more than 50. WHAT?? How is that? We’re hoping that its reflux. Although that’s a high number for reflux. So we are starting her on a reflux med and will scope her in 8 weeks. We are also going to do a fish trial on her. Since she’s stopped drinking as much formula we need to get something else into her. Do I agree with this plan? Not 100% I don’t like her on the steroid, all we’re doing is masking anything that may still be effecting her from her diet. I hate adding foods when on steroids. Again, the steroid just masks problems. However, she doesn’t have enough food to thrive. She’s two, she has to grow. I did manage to help her gain some weight while I was getting her to drink the formula. In my perfect world we would add the reflux med, stop the steroid and re-scope in 8 weeks. That wold be the real truth of what’s going on with her.DSCN3424

So my kids are now eating fish, Tinleigh will trial it tomorrow. Who would have thought I would ever be preparing fish for these three? I’m so happy that its working out. I just hope and pray the scopes in December are still good.

October 8, 2013 Posted by | Charlie's allergies, Gage's allergies, LIVING, Tinleigh's allergies | , , , , , | 3 Comments

Bad scope

Gage was recently scoped. We knew ahead of time it wasn’t going to be good. We were having troubles getting him to eat. He was “gunky” in his throat a lot while he ate. He even complained of potatoes in his ears when he ate. There were even a few occurrences of him having a reaction to his dinner when it was made from scratch, 100% safe, and he shouldn’t have been reacting to any of it.

Doing this scope with out his side-kick, Charlie, I could tell Gage was nervous by himself. He was a trooper though. No tears, no whining, he did as he was asked and made it easy on everyone. I think me staying calm helps him to stay calm. I always use distraction techniques too. Talking about the positive of why we do it. A treat he might get to have after we’re done. Things like that. They wheeled him away in a wagon in his giggly loopy state of mind. Forty five minutes later I met the GI doctor in a tiny room. Gage’s esophagus is covered in white. I think it’s probably candida but it could be eosinophil abscesses. There is fibrosis and linear furrowing. He is inflamed. His stomach and small intestine do look good though.

*sigh*

It’s like you know it’s bad, but you don’t really want to hear how bad.

So I gather my thoughts while I wait on the biopsy results. Well he’s off of everything he’s ever tested positive to. The one thing he hasn’t tested positive too but most kids with EoE respond to the removal of is dairy. Okay, so we’ll remove dairy. We’ll also have a skin prick test done on all foods to see where he is on those since it’s been a while since he had them tested.

That Friday the GI nurse calls. The doctor would like a meeting with you. Strange, she’ll usually call me herself. Gage doesn’t have candida, he has eosinophil abscesses. His entire esophagus is covered in clusters of white blood cells. His counts are about the same as they were in December staying at 50+ in the mid and lower esophagus. ugh. I inform the nurse we’re getting the skin prick test done the following week and we can meet with the GI doctor Friday.

That brings us to today. We had the skin prick testing done. I hate it. He hates it. I somehow manage to talk Nathan into going with us. (YAY!) We talk with the allergist then the nurse comes in with the tray. I don’t see any caterpillars. She says she wants to do it on his arms. I see a big needle. My heart starts racing and I panic. She assures me if he doesn’t take well to this way then we’ll do it on his back. He holds his little arms out as she instructs and she gets busy. He replies “that didn’t hurt” over and over. Phew. Towards the end a few were starting to hurt and he was itching before she was even done. I had taken in millet flour, sorghum flour, coconut flour and xanthan gum to test these since he eats these all the time. I could instantly see these spots getting red. The nurse even commented on them. I lost it. I had to leave the room. I let the tears flow a minute then sucked it up and headed back in. Nathan of course jumped on me to suck it up and not make it worse for Gage. I knew that. I blew on his little arms to help with the itching and watched the welts grow. The allergist came in before the time was even up and just shook his head. Thanks doctor. So he started marking things down. We quickly realized they didn’t have a test for potato on his arm and the nurse was sent to find some. We got that on there. Thank goodness we did. The results of this test are so frustrating.

Old test are things that were positive and he is not eating. New test are the things that were positive along with new foods. They didn’t have a few of the foods so I have NA listed on the new test.

Old test                                                 New test                                             

Beef                                                        Beef

eggs                                                       eggs

soy                                                         soy

rice                                                       NA – doing blood test

seafood/fish                                        seafood/fish

peanuts/tree nuts                              peanuts/tree nuts

peas                                                      NA – but in the nut legume/nut family

mustard                                              NA

celery                                                  0

sesame                                                0

wheat                                                   0

oats                                                       NA – doing blood test

corn                                                      0

potato                                                   potato

pork                                                       0

                                                            millet

                                                             sorghum

                                                            poultry

He’s never tested positive to dairy and still is not. The last 3 are listed in the new column are things that are in his everyday diet. So it’s no wonder he’s such a mess. However, the foods wheat, corn and dairy are typically taken out of an EoE kids diet even if they don’t test positive to them to help them get clear. I took those things out and replaced them with what he’s now allergic to. He’s still not testing positive to dairy so why should I take it out? Or should I because so many kids clear up once it’s removed. You would think just removing what he’s having an issue with and putting the other foods he’s zero on now would be the solution. I hope the GI doctor see’s it that way on Friday. We are doing a blood test on milk, wheat, chicken, potato, corn, shrimp, rice and oats.  His shellfish was screwy. Shrimp was very positive but nothing else was. That’s not common. So it’s either a false positive or false negatives on the lobster, crab and clam. Who knows. He told us we really need to stay away from beef as it is very high, along with egg, peanuts and soy.

Not the cut and dry answer I was hoping for but at least there’s some changes we can make.

Friday’s appointment can’t get here soon enough.

August 22, 2012 Posted by | Gage's allergies, LIVING | , , , , , , , , , | 5 Comments

Charlie Update

Since I’ve been neglecting the blog for the last 3 months it’s time for an update on everyone.
Charlie was scoped in December. He has been off steroids for around 10 weeks. His scope came back zero eosinophils! This was a huge relief to us to know the steroids weren’t masking the disease. If they had been masking the disease we were going to have to remove the foods he had tested positive to when he had his patch testing. Two of which were wheat and milk. So it was very important for him to have a good scope.
Charlie has been eosinophil free since last December. He went from not eating 20 foods down to 10 this past year. The GI doctor told us at this point we don’t need to scope him unless he starts showing symptoms or we just want to know what’s going on. We are also allowed to add foods back one every two weeks. We are adding them back in order of least allergic to most allergic. We’ve given him deer and he did just fine. Next will be rice, then celery. From there it gets a little tricky because it’s foods that are typically highly allergic foods or foods we’ve seen reactions on.
Here’s his current do not eat list:
Beef
eggs
soy
sesame
peanuts and tree nuts
seafood with the exception of lobster
all melon
peas
pineapple
going to try celery and rice.

January 16, 2012 Posted by | Charlie's allergies, LIVING | , , , , , , , , , , , , , , , , , , | Leave a comment

Specialist

I am so excited! We got accepted into the EE specialist group in our area. Well, it’s a bit of a drive, but close enough!

The group consists of an allergist, a GI doctor and a nutritionist. We don’t go until September, but I am willing to wait. With the conflicting new blood test and scope results my head is starting to spin. I think a group of doctors actually working together would help ease my thoughts about what’s going on. Instead of one doctor doing one test, another doing the scope then they just sort of rely on each other to give good advice on what to do. I loved my doctors in Indiana and wish I could find a pair like them again. Hopefully this new group will be it!

June 26, 2011 Posted by | Charlie's allergies, Gage's allergies | , , , , | Leave a comment

Blood tests and scopes

Both boys got their blood test results back from the microarray test. At first I was so excited! Charlie’s showed he was only allergic to Peaches and Kiwi. Charlie’s environmental came back positive to basically everything outside including mold, dust, cat and dog. He should probably be in a bubble. Gage’s food test showed only nuts, eggs and soy. His outdoor came back with a few grasses, russian thistle (tumble weeds when they’re alive) and cockroaches. Darn cockroaches. lol

So pure excitement ran through Nathan and I. The boys are doing better, we’re going to get to add just about everything back into their diets!

Then the questions ran through my head. What about the foods that Charlie has shown actual reactions to? The blisters on his lips when he eats mustard, the itchy mouth when he eats beef or the hives he gets when he touches any kind of melon? What about the foods that made Gage vomit, have diarrhea or hives?

Even more thoughts crossed my mind about the test and what the doctor had said about environmental allergies triggering Charlie’s EE. Charlie was tested the first time for EE in May of 2010. He was just scoped again June 7th. With his environmental allergies at their highest right now I would certainly think that his scope will come back positive. He’s been having throat clearing issues, lots of asthma attacks and swollen eyes. So certainly this will prove Charlie’s EE is environmental.

June 7th – Charlie’s scope day. Gage had been on an oral steroid for his asthma the week prior so he would not be scoped the same day as we usually do it. Charlie’s scope went great. Everything looked perfect and he had zero eosinophils in his esophagus. He did have a few in his duodenum but the doctor said a few there is normal. SUPER! However, this does not answer the question is Charlie’s EE caused by environmental allergens. Charlie’s allergies are so bad right now I expected his esophagus to be a mess. So I’m now very leery of the microarray test and what it has shown for Charlie. So we have started adding more foods back into Charlie’s diet. We started with beans. He LOVES lima beans and green beans. Nathan gave him a can of bean and bacon soup for lunch this weekend and Charlie ate half the can! Things are going great for Charlie.

June 21st – Gage’s scope day. Very bad news. Gage’s esophagus was very inflamed, had furrows and plaque. The doctor said the plaque could be a yeast infection from the medicine that sits on his esophagus every night. We would treat it with nystatin if it came back positive for yeast. She also said the plaque is very common with EE. Not sure yet what the result of that test is. We did get Gage’s eosinophil count – 49. That is the highest his has ever been. It’s actually as high as Nathan’s. Broke my heart. He hasn’t shown any outward reactions, nothing. I don’t have the rest of the results for his stomach and duodenum. Since Gage’s last scope in December that was clean we had added back wheat, oats and corn. We have now removed wheat and oats. My mom gut feeling has told me from the start that wheat is Gage’s trigger. I hate if I’m right. We are basically back to the beginning with Gage. He is off all foods we started with except corn. We really hope his next scope is clean so he can keep corn.

So that’s where we are now. The highs and lows off EE.

Nathan is not being scoped at this time. He is doing well enough he doesn’t feel like he needs to be seen. I’ll push him more this winter to get things checked out again.

June 26, 2011 Posted by | Charlie's allergies, Gage's allergies | , , , , , , , , | Leave a comment

Met our new allergist

So I called a few weeks ago to get Charlie into the allergist for his asthma. We have noticed it’s worse this summer running around playing. It’s never been officially explained to me, we don’t have an action plan. Thought I better inform myself better and see if he needed different or new meds.

We arrive and I make sure they have all the past files they need. Then the doctor comes in. Wait, let me set the scene. The traditional small exam room with a few kids toys and books. Charlie and Gage both fell asleep a half hour before we got there in the car, both still tired, irritable and quickly getting on each others nerves. They were also starting to act like they were caged animals and couldn’t get out of the room. OK, doctor comes in and I explain we’re there because Charlie’s asthma seems worse this summer. He goes through a list of questions not realizing Charlie has EE or all the food allergies. This appointment quickly turns into something I wasn’t expecting.

1. The doctor was more concerned with Charlie’s nutrition or lack of and insisted I meet with the nutritionist. I’m all for that, been waiting on a good one to come along.

2. The doctor thinks this new cough Charlie has isn’t related to EE but instead hay fever. He’s not 100% though. So we have new meds for that.

3. There’s a new blood test called microarray –  determines the allergic profile in children and adults. It tests more than 100 allergenic proteins and has been very helpful in identifying patients with serious allergies to peanuts, milk, eggs, wheat and tree nuts proteins without the risks of a food challenge. It also includes the usual allergens dust mite, cat, dog, weed, grass and mold proteins… The concordance with ImmunoCAP is better than 90% at 10% of the cost per test.  It provides a more complete picture of allergic sensitizations.    So at the end of the appointment Charlie had the blood draw. I won’t go into the details of that but we’re down to 3 nurses and mommy holding him down now.

4. Once we get the blood test results back we will base Charlie’s diet off of that. I asked though what about conflicting results. For instance, I have seen Charlie break out in blisters on his lip from mustard and we have seen him get an itchy mouth from beef. The allergist said that those are local intolerances and he can either eat them or avoid them according to his reaction if he wants it. I’m not 100% on board with that and neither is Nathan. The allergist said it’s not a true allergy just an intolerance. So I’m thinking his focus is mainly on true anaphylactic reactions. We’ll see. My head is swimming tonight with all this info.

5. Charlie will be scoped soon. Waiting for the nurse to call back with the day and time.

6. The doctor is more curious if Charlie’s EE isn’t caused by outdoor allergens instead of food since he doesn’t have major reactions to food. We’ve only had minor ones such as hives, itchy mouth and some blisters. Seriously can I put him in a bubble if it is outdoor allergens?

7. We did walk away with a new asthma plan. Starts with the green zone – mild, then yellow, last is the red zone – extreme. Well Charlie’s red zone is how we end up treating Gage when his colds get the best of him and he ends up in the hospital. I told her that and she looked at Gage and said “Does he have an asthma plan?”  I told her no and we now have an appointment for Gage to see the allergist in July. He’ll get basically the same testing Charlie had today.

8. I am going to push Nathan until he gets the new blood test done. I think it will help.

9. Charlie left today with 10 prescriptions – 6 of them were new meds.

10. I did start to have a pity party in my head on the way home but really in the grand scheme of things we’re just fine. The doctor I think was trying to get me upset a few times being sympathetic and saying oh how hard it must be to deal with all this and I told him flat-out “We deal with it like we deal with everyday. We don’t dwell on it and we keep going. No sense in sitting around being worried about it.” By the look on his face I don’t think it was the reaction he was expecting.

We’re the Root’s, not quitters!  🙂

Two and a half hours later we finally walked out of the hospital. I don’t know how I managed to keep my cool with the boys the entire time. I honestly don’t remember the last time they didn’t listen to word I said. They were horrible. Of course this is all while I’m trying to soak in tons of new info.

Don’t forget it’s National Eosinophil Awareness Week

p.s. Family be ready for copies and an education on our new action plans. You will need to know and understand them.

May 16, 2011 Posted by | Charlie's allergies, daily life, Gage's allergies | , , , , , , , , , | Leave a comment

EE x 3 = beer (except we’re allergic to that too)

Just a little brief catching up…My husband was recently scoped and low and behold he has EE to the extreme. Sort of like Vanilla Ice. Ice is something he’s actually not allergic to. He scored positive on 39 foods. YES, 39. Yikes. Don’t worry he still gets to eat! Check out our updated list of allergies under the allergy tab.

So now mommy is dealing with three special EE diets. It’s not easy, but it’s our life. WAIT! Should I have my own tv show?  Atleast a discovery health special. TLC are you reading this? lol

I’ll be back, promise! I am spending lots of hours cooking and looking for meals to make. This blog got put on the back burner. LOL

September 14, 2010 Posted by | daily life | , , , , , , | Leave a comment

News From a Nurse

Spoke to the nurse today. Who I’ve started to hate because she only ever has bad news. I also hate the grocery store now but that’s a whole other story. Anyways, the boys are to go on strict diets and not have anything they’ve shown a positive food reaction to. (See why I hate the grocery?)  So the lists I’ve mentioned before are now in play.

Game on food allergies. I will win!

We’ll scope Charlie in 6 months in hopes his will be clear and gone. We’ll scope Gage in another three since his numbers went up.

June 3, 2010 Posted by | daily life | , , , , , , | 1 Comment

Double Scope Day

Not scoped top and bottom, but two boys each scoped.

Having any procedure done they always say no food or drink after midnight. So why would they schedule a 4 and 2-year-old at noon and 1 P.M.? We kept the boys up an extra hour thinking they would sleep in a little. No way. Charlie was up at 6:15 a.m. Explaining to a 4-year-old that he can’t have his morning hot cocoa wasn’t easy. Try skipping your coffee for a morning and see how grumpy you are. Gage slept until about 8. So to keep them busy and not thinking about food or drink I took them to pick out a toy. Totally worked! Everyone stayed happy.

We arrive at the hospital and daddy meets us there. They call Charlie back first and I go with him. Gage came shortly after with Daddy and they were across the hall. We get Charlie in his gown, answer questions and put some numbing cream where they would do the IV. He has no clue what is about to happen. We decided to keep it that way or we would have never gotten him in there without being clawed to death. So I ask the nurse if he will get the drink to make him loopy. She tells me no and asks how much help she’ll need getting blood and the IV into him. I said a lot he is big time drama. So she comes back with three nurses. No sooner did she have out the rubber band to go around his arm he was screaming and we couldn’t hold him down. Actually I don’t think I want to blog this story. It’s not nice, the turn out was horrible, I will be filling out a negative questionnaire. Let’s just say even the nurse was crying when it was all over. So once they take Charlie back we can hear Gage across the hall calling for us. I’m dizzy at this point because I hadn’t eaten either so I sat in Charlie room and nibbled a sandwich Nathan brought me while he went over with Gage. Gage was calm and relaxed from his drink. No worries in his room. The GI doctor came into his room very happy that she did not see anything wrong with Charlie inside. GREAT NEWS. Now it’s Gage’s turn. He went without a peep, just happy to be getting a table ride. Charlie came out and he was very drugged up. Again, I’m not going into it. The GI doctor came out a quick 5 minutes later. GAGE LOOKS GREAT! His swelling was gone! We couldn’t have had better news.

The first three pictures left to right are his scope from January. The last one is from Tuesday. You can see there is no more swelling and you can see the veins now.

Gage came back to us shortly after. Charlie pukes a few times. Then we all went home for the evening. In shock from all the emotional drama before and the great news after we were all four exhausted.

Now we just wait for about a week and we’ll have their biopsy reports to tell us their eosinophil numbers to make sure they’re both 100% okay. It’s going to be a long week of waiting.

May 22, 2010 Posted by | Charlie's allergies, Gage's allergies | , , , , , , , , , , | Leave a comment

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