LIVING

With EoE, Allergies, Asthma and a G-Tube

Charlie Update

Since I’ve been neglecting the blog for the last 3 months it’s time for an update on everyone.
Charlie was scoped in December. He has been off steroids for around 10 weeks. His scope came back zero eosinophils! This was a huge relief to us to know the steroids weren’t masking the disease. If they had been masking the disease we were going to have to remove the foods he had tested positive to when he had his patch testing. Two of which were wheat and milk. So it was very important for him to have a good scope.
Charlie has been eosinophil free since last December. He went from not eating 20 foods down to 10 this past year. The GI doctor told us at this point we don’t need to scope him unless he starts showing symptoms or we just want to know what’s going on. We are also allowed to add foods back one every two weeks. We are adding them back in order of least allergic to most allergic. We’ve given him deer and he did just fine. Next will be rice, then celery. From there it gets a little tricky because it’s foods that are typically highly allergic foods or foods we’ve seen reactions on.
Here’s his current do not eat list:
Beef
eggs
soy
sesame
peanuts and tree nuts
seafood with the exception of lobster
all melon
peas
pineapple
going to try celery and rice.

January 16, 2012 Posted by | Charlie's allergies, LIVING | , , , , , , , , , , , , , , , , , , | Leave a comment

Pork, Hold the Fruit

We eat pork usually every night of the week. (I have always hated pork) This is the only meat aside from lobster, crab and shrimp that Nathan isn’t allergic to. Who can afford shellfish every night of the week? (Oprah – can you hook us up?) My latest “help” is to check out cookbooks from the library and just go through them page by page to find recipes.

When making many different pork dishes a few repeating ingredients are pineapple, apples, and oranges. I have actually started yelling at the cookbooks. Nathan is allergic to all fruit. This has become a never-ending battle for me. I can feel the tears start to well up every time I see “add one cup apple juice” or “add one can crushed pineapple”. There’s no getting around it. I know it’s not really about me, it’s about finding safe things for my husband to eat. However, this love affair between fruit and pork is really starting to upset me.

Dear Pork and Fruit,

Next time I see the two of you together I will throw my beer at you! 

Sincerely,

Kara

October 26, 2010 Posted by | Nathan's allergies | , , , , , , | 1 Comment

Are More Allergies Possible?

Took Charlie to the allergist today to get tested for mustard and eggs. We decided to do the whole food panel and seasonal allergies to get it out-of-the-way. No sense in putting him through more testing down the road. Plus Charlie is drama about somethings so I knew this wasn’t going to be fun.

Nathan holds Charlie on his lap while the nurse starts pricking his back. The first group of 8 he was ok with. The second group he started to cry and by the third he was screaming. We had to grab his hands and Nathan had to hold him tight. Poor Gage didn’t understand what was going on. I look over at him and he’s bawling at the site of his brother in pain. I’m trying not to cry and trying to get ahold of Gage’s hand to help console him. HORRIBLE

Once it was over Nathan takes Charlie to the play room. I have to change Gage’s diaper. He repeats over and over in his toddler language “needle?” 

Once the timer beeps we all head back to the room. The nurse holds Charlie on her lap as she measures and reads off a bunch of numbers to another nurse. The nurse writing says to me “You guessed mustard, right?” Right I answer. She says “mustard is one, and beef….” I just sort of ignore the rest of what she said. I could see he had a lot of hives but really didn’t want to believe them. The Dr comes in, looks over the paper then looks at Charlie’s back. He then starts to read: Soy, all nuts, all seafood, beef, chicken, cantaloupe, pineapple, celery, corn, green beans, onion, pea, garlic, mustard, oat and rice. I was head down, in complete tears and had to leave the room. So I gather myself and step back into the room. Nathan at that point is asking about the research they do in Cincinnati Ohio. The Dr said he is going to refer us there. He doesn’t want to come out and say Charlie has the same disease as Gage, but with Nathan’s food allergy history and the fact that Gage has it… We’ll get Charlie scoped and see what happens.

Charlie also has seasonal allergies to all pollen, outdoor mold, cats and dust.

May 13, 2010 Posted by | Charlie's allergies | , , , , , , , , , , , , , , , , , , , , , | Leave a comment

   

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