LIVING

With EoE, Allergies, Asthma and a G-Tube

Our EoE video

I’ve been wanting to do a video for a few years now and have never found the time to do it. Even now I’m typing one handed and feeding Layton. I stayed up until 2am last night after the kids went to bed and got a video made!! Then of course I had issues converting it and uploading it.

Here it is! It shares a quick glimpse of our journey with EoE from January 2010 until today.

EOE

May 23, 2014 Posted by | LIVING | , , , , , , , , , , , , , , , | 1 Comment

Please help us find a cure

You are just a few clicks away from helping my kids one day be able to go to birthdays and eat what the other kids are eating.

One click away from my kids going out for breakfast on their birthday.

One click away from going to the movies and buying a treat.

One click away from a family vacation, which is virtually impossible unless i pack an entire trailer of food.

One click away from my kids going to the dairy bar or getting a treat from the ice cream truck.

One click away from me not having to pack a duffel bag of food every time we leave the house for more than a few hours.

I think most importantly, one click away from me cooking one dinner for my family that we can all sit down and enjoy together.

You’re also one click away from helping many families put an end to the staggering grocery bills.

One click away from helping end the outrageous hospital bills that are never ending because of the maintenance of this disease.

Please help us find a cure.

Forgo you’re expensive coffee tomorrow and donate that money to CURED.

Donate what your family would spend when you go out to dinner.

Donate the cost of the candy your child picks out in the grocery line that mine can’t eat.

Donate $1.

Every little amount helps my kids come closer to one day being able to eat a normal healthy diet.

DSCN3964

May 19, 2014 Posted by | LIVING | , , , , , , | 2 Comments

National Eosinophil Awareness Week

Today is “C” Change

* Change the way others view your disease by providing them with information about the disease and treatment options and how the disease has changed your life.

Here is a great fact sheet about EE http://apfed.org/downloads/Fact_Sheet_5_10.pdf

It says to tell how EE has changed our lives. We try just the opposite. We don’t let it change our life. We eliminate the necessary foods and keep going. We’re not going to let it take over our daily lives. My boys are all boy and we keep going doing the everyday boy things. I will admit in the beginning this disease consumed me 24/7 for a few months. I quickly learned not to dwell on it and to keep going. My boys are healthy, growing and happy. That’s what matters most!

Living life to the fullest

May 18, 2011 Posted by | daily life | , , | Leave a comment

Wednesday Challenge

Wednesday is Fun with family and friends.

My Challenge for you is to eat like us for a day! Here’s your list of do not eat foods: wheat, soy, sesame, rice, oats, mustard, beef, all fish, chicken, celery, corn, peas, green beans, onions, garlic, eggs, potatoes, all nuts, pineapple, all melon. Make sure and read those labels!

May 19, 2010 Posted by | daily life | , , , , , , , , , , , , , , , , , | Leave a comment

Dum Dum

A treat is neat,

But what if this was ALL you could eat?

Learn more at www.apfed.org

 

 

May 18, 2010 Posted by | Uncategorized | , , , , | Leave a comment

Celebrating National Eosinophil Awareness Week

I know you may be aware that Gage, and possibly Charlie, has an Eosinophil Associated Disorder called EE. Eosinophilic (pronounced e-o-sin-o-fil-ick) Disorders are poorly understood and often misdiagnosed. While Gage and Charlie might look healthy on the outside, the reality is that this is a very difficult disease to live with. In honor of National Eosinophil Awareness Week, I ask that you take a moment to reflect on all the blessings you have in your life and think about how this disease impacts the boys and our entire family. We are in desperate need of research funding to find better diagnostic methods and effective treatments for Eosinophil Associated Disorder.

Gage’s Eosinophil Associated Disease affects our lives in the following way:

Gage was diagnosed in January of this year. We have remove 14 common foods from his diet. Cooking for a toddler in general is hard. Imagine if you can’t feed them chicken nuggets, french fries or mac n cheese. Removing 16 foods from Charlie’s diet until we know his diagnosis is a little harder. He’s use to the chicken nuggets and all the yummy things. Telling him he can’t have his favorite chips anymore while grocery shopping just breaks my heart.  

Please consider watching this short educational video http://apfed.org/video1/video1.htm to learn more about these disorders.

You can also make a donation online at http://www.apfed.org/donations.htm to support our cause.

  Thank you for supporting our family and taking the time to learn more.

2010

May 17, 2010 Posted by | daily life | , , , , , | Leave a comment

   

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