LIVING

With EoE, Allergies, Asthma and a G-Tube

Making Friends, Accepting Differences

Being different is something I’ve always explained to my kids. Even before we were different. I’ve not only spoke to them about being different, but also about accepting differences.

In fact, when I spoke to Tinleigh’s kindergarten class about her allergies and feeding tube I used the words “being different, and it’s okay” as the main point.

So when I was told a story about Tinleigh asking the school nurse “What’s wrong with her?” I about fell over.

As you read in my last post, Tinleigh spends a lot of time in the nurses office. She gets to meet a lot of the kids at school. One day a little girl in a motorized wheel chair came in. Right in front of her Tinleigh says “What’s wrong with her?”. The nurse quickly shushed Tinleigh and said “Tinleigh, how would you feel if someone came in and asked me what was wrong with you?”. Tinleigh cupped her hands over her mouth and had an “oh my gosh what did I just say moment”. The nurse then introduced the other little girl to Tinleigh and asked the other little girl if she could explain to Tinleigh why she was in a wheel chair. Being non-verbal the other little girl shook her heard yes and smiled intently. The nurse explained to Tinleigh this special little girl isn’t able to walk or talk, but she understands everything people are saying around her. Her motorized chair helps her get around and she has a computer on her chair that helps her communicate. Once the nurse was done explaining to Tinleigh about the little girl Tinleigh stepped up to her, lifted her own shirt showing her, her feeing tube and said “This is what makes me special.”. The little girl held her hand out, Tinleigh placed her hand in hers and the two girls just smiled at each other. Instant friendship.

OH MY HEART!

I wish I would have been there to witness this moment. I was concerned at the start of this story that Tinleigh had forgotten she’s a little different as well. I don’t think Tinleigh intended to sound so rude, I think she was just more curious and didn’t know the correct way to ask. I am glad Tinleigh shared her something special.

I am so sorry to this little girl and her parents that Tinleigh was rude.

I am forever thankful for the nurse correcting Tinleigh and allowing those two little girls to have a moment.

The girls will continue to bump into each other in the nurses office throughout the year. I hope their bond grows stronger.10418453_10206402281322733_6302818484168056288_n

Advertisements

September 24, 2017 Posted by | daily life, LIVING, Tinleigh's allergies | , , , | Leave a comment

School!!!

Both boys are successfully back in school. *big exhale* I could really use the little break, but at the same time if I don’t stay busy then I end up worrying about them all day.

This year things are a little different. Charlie knows the ropes and feels confident about staying safe. Gage’s pre-school has gone PEANUT FREE! Oh happy day!  Granted he’s still got 20+ other allergens he needs to stay away from but the nuts are what got us into trouble last year and I don’t want to revisit that, or worse. Just knowing the other kids won’t be having nutter butter cookies, crackers and peanut butter or bringing in a peanut butter sandwich just makes me smile. I actually smile when I think about that.

Breakfast: Gage oatmeal (cooked millet grain with sugar) and hot cocoa (coconut milk and homemade chocolate syrup warmed up)

Breakfast: oatmeal and hot cocoa (carnation instant breakfast and milk warmed up)

Don’t ask me what was wrong with Gage. Just right at that second he decided he wasn’t happy and wasn’t going to smile.

After comparing to last years pictures I realized they each grew one brick taller!

Both became a bit more handsome. 🙂

Little Miss doesn’t enjoy me waking her up on school mornings.

She’s happy to ride along though.

For all of you allergy parents and kids of special needs

“Here’s to a wonderful, uneventful and educational school year!”

September 5, 2012 Posted by | Charlie's allergies, Gage's allergies, LIVING | , , , , , , , , | Leave a comment

   

%d bloggers like this: