It is awesome that Gage and Tinleigh are eating now. As of today Gage has added apple, buckwheat, corn, pickles / cucumber, VeganEgg, squash and oats. Tinleigh is up to banana, corn, squash, potato and pear. Tinleigh tried pickle and coconut but had a reaction to both. When she tried pickle her bottom lip swelled up and with coconut her throat felt funny she told us.
What I completely forgot about was how hard it is to cook for all the people! I try to make fun things for them to eat so they get the full spectrum of foods with what little they have. I’ll tell you what though, it’s tough. Every recipe is 50 different ingredients. The dishes pile high and then it feels like you’re starting all over again.
I have successfully made Gage some buckwheat cornbread. Just to see the smile on his face when he eats it defiantly makes it all worth the while. He’s also had buckwheat pancakes and buckwheat apple cinnamon muffins. I think he’s in heaven . I tried to make Tinleigh some banana coconut muffins but those bothered her throat. She’s loving corn and we had totally forgotten about corn pasta! Huge hurrah for that. She keeps telling me she is just having the best days of her life because she can eat different foods. Makes my heart smile and break all at the same time.
I’ve found them dried fruits to snack on along with safe fruit leather. Gage can eat crackers and they both have noodles now. It’s all so exciting to them. Potato chips, corn chips and popcorn! Things every kid should be able to enjoy.
On the new news front we had Layton’s allergies tested. She was so cooperative and brave. Poor thing had no idea she was about to be pricked 50 times. She didn’t even cry out. She did hit me twice when it was done though and that’s okay. Lucky for her only 3 things showed up; clam, oyster and flounder. She’s eaten fish sticks and snuck some of Charlie’s shrimp before but never had a reaction. Her testing was so small they said just use caution. Well I don’t think she’s a huge oyster fan so I doubt we’ll have any trouble telling her no. We still plan to scope her in April and see if anything is going on in there.
Tinleigh had a huge reaction to playing with play dough so that’s completely out now. She’s had smaller reactions here and there. Sometimes even played with it and didn’t have a reaction at all. This last one really got her so I told her no more. She wishes play dough was never created.
Tinleigh’s airborne reactions seem to be under control. She did have some freak eye incident a few days ago. Her eyes just swelled up. I have no idea why. We threw her in the shower and gave her some Benadryl and she cleared up. You never know who’s going to react to what here.
What I’m most excited about soon is spring break. We LOVE the beach and the beach loves us. It will be even more awesome that this year we can actually go out to eat. We never do because it’s just too hard to eat in front of them. This year I can pack them food and everyone will get to eat together!
Gage was scoped in December the same day as Charlie. We had tried to take Gage off his steroid when we took Charlie off his, but Gage started choking and coughing a lot so he went back on it. Before this scope we had removed wheat and oats from his diet because of his horrible bad scope in July. So we were really hoping there would be improvement.
It took a little longer than usual for the GI doctor to call me after their scopes so I called her. She gave me Charlie’s news with great enthusiasm. Her mood drastically changed when it was time to talk about Gage. Gage’s scope was still very bad and that is why she hadn’t called me. She didn’t know what to do and was trying to figure it out. His mid esophagus had 14 eosinophils and his distal was 54+ and there are fibrosis. Fibrosis is the hardening of the tissue which is what we are trying to avoid and the reason we do special diets trying to find the trigger foods. I got very upset. So it’s more than the wheat and oats that’s causing Gage’s issues. I told her that the only other food he’s eating that was removed before is corn. She reminded me that his patch test came back positive to pork and green beans. So after a long discussion she left it at we remove pork and green beans and keep him on his steroid twice a day. We’ll re-scope him in 3-4 months. At that time if he isn’t better, then we’ll remove corn. So Nathan and I had a talk that evening and we talked about why waiting to take out corn, because that eliminates a lot of everyday things for him. We then decided that we would let him try potatoes. If he did ok on potatoes then we would take out the corn. If he has a clean scope next time we know it’s probably pork, corn or green beans. If it’s a bad scope then we know it’s potatoes.
Gage is currently off the following foods:
peanuts and tree nuts
It’s tough. Although having potatoes allows him to have a few flour mixes and cake mixes he couldn’t previously have because of the potato starch. Now if he could just have rice our world would be so much easier.
I wish I had a magic recipe book that would have every meal planned out for a month, including the shopping list. Trying to come up with something for dinner I just made something up.
I browned some ground turkey while boiling some corn pasta. For the veggie I cooked a little bit of corn. Once the corn and noodles were done I added them to the browned turkey in the skillet. I had the last part of a bottle of zesty italian dressing left so I dumped that in. I also tossed in some halved cherry tomatoes for color. The boys thought it was great and ate every bit! I was surprised. I’ll keep this one on file for something quick and easy!
I tried to get creative with beans. I also wanted the meal to be something I could throw in the crock-pot. I had chicken on hand so I threw that in then started dumping in cans. I added black beans, kidney beans, corn, tomato sauce, diced tomatoes and a half packet of taco seasoning. I just let it cook all afternoon. About an hour before I was going to serve it I pulled the chicken out and cut it into bite size pieces, then dumped it back in.
I put a few ladles in each of the boys bowls and topped it with cheese. When I set it in front of them I told Charlie it was Mexican food. Much to my surprise he was so excited. He said he had always wanted to eat Mexican food and he dug right in. Ate the entire bowl! Gage wasn’t as excited, but like his enough to finish half.
I had enough left over for a few Tupperware containers and put them in the deep freezer for quick meals. I really didn’t think their little systems could handle that many beans for leftovers.
Although we still have a long road ahead of us, right now things are great. Gage has been eating wheat and corn for a month now and no problems at all! He’s also ditched his crib, diapers and bottle! He’s like a little man now. (sniff sniff) I knew that when he was asking for a bottle of warm milk it was time to give it up. I let him have it for so long after turning one so that he would get extra calories he needed. Knowing he always finished his bottle it was a win win for both of us.
We’ve had his toddler bed set up in his room for quite sometime but he’s been afraid of it. I think he’s going to be a gentle giant when he grows up. Finally one night I said let’s try the big boy bed again. He slept in it all night with no problems. Next day, crib came down. The great thing about it is he won’t get out of the bed unless I’m in the room. That includes during the day too. With Charlie we would always have to sit there until he fell asleep because he would never stay in it.
The potty training was super simple too. He’s not even 2-1/2 yet! First week we went right into underwear. He had 3 accidents and that was it. He’s even staying dry at night and during nap. He may be the easiest kid yet.
He recently had his first pop tart. It was like baby crack. Have to be careful though some pop tart flavors do contain egg. I’m still learning!
So let’s cheers to Gage for a great month!
Oh that’s right I’ve been allergic to it. Just some thoughts I’m sure Gage is having now. Let me back up a bit.
Gage recently was scoped for a EE check up. Everything came back clear! No eosinophils in his esophagus or blood stream! What a huge happy day for us. Dr gave us the go ahead to try corn. So after two weeks on corn with no reactions I called the allergist. He decided to go ahead and let us try wheat too. We’ll stop there until the next scope. For the past few days Gage has had wheat products. The very first thing he asked for were “Charlie noodles”. Coming from a two year old it was pretty cute. Oh he loved them! He knew just how to stick his fork in there and twirl it around. He’s also had a few Ritz crackers, two oreo cookies, a slice of toast and a cinnamon roll. No reaction. We’ll go slow on it for a while just like with the corn. I told my husband if he can have corn and wheat back then i’m fine with just that! Yeah wheat and corn!
Wednesday is Fun with family and friends.
My Challenge for you is to eat like us for a day! Here’s your list of do not eat foods: wheat, soy, sesame, rice, oats, mustard, beef, all fish, chicken, celery, corn, peas, green beans, onions, garlic, eggs, potatoes, all nuts, pineapple, all melon. Make sure and read those labels!
Took Charlie to the allergist today to get tested for mustard and eggs. We decided to do the whole food panel and seasonal allergies to get it out-of-the-way. No sense in putting him through more testing down the road. Plus Charlie is drama about somethings so I knew this wasn’t going to be fun.
Nathan holds Charlie on his lap while the nurse starts pricking his back. The first group of 8 he was ok with. The second group he started to cry and by the third he was screaming. We had to grab his hands and Nathan had to hold him tight. Poor Gage didn’t understand what was going on. I look over at him and he’s bawling at the site of his brother in pain. I’m trying not to cry and trying to get ahold of Gage’s hand to help console him. HORRIBLE
Once the timer beeps we all head back to the room. The nurse holds Charlie on her lap as she measures and reads off a bunch of numbers to another nurse. The nurse writing says to me “You guessed mustard, right?” Right I answer. She says “mustard is one, and beef….” I just sort of ignore the rest of what she said. I could see he had a lot of hives but really didn’t want to believe them. The Dr comes in, looks over the paper then looks at Charlie’s back. He then starts to read: Soy, all nuts, all seafood, beef, chicken, cantaloupe, pineapple, celery, corn, green beans, onion, pea, garlic, mustard, oat and rice. I was head down, in complete tears and had to leave the room. So I gather myself and step back into the room. Nathan at that point is asking about the research they do in Cincinnati Ohio. The Dr said he is going to refer us there. He doesn’t want to come out and say Charlie has the same disease as Gage, but with Nathan’s food allergy history and the fact that Gage has it… We’ll get Charlie scoped and see what happens.
Charlie also has seasonal allergies to all pollen, outdoor mold, cats and dust.
Blood results in and Dr says corn is negative. Rice is still a low 1.2 and oats is a 1. With both of those numbers being low and I’ve never seen a reaction we keep him on them. I argued about the corn and the Dr said we can do a test in office to see how he reacts to corn. He doesn’t want me to take him off corn because there isn’t a lot left with out it. I already know this. Dr says feed him corn, I will feed him corn.
So today at lunch I pull out a jar of baby food that is a safe veggie blend for him with corn. It’s all organic too. An hour later, diarrhea. Three hours later his bottom is starting to get inflamed again. I also gave him a popsicle (corn syrup) and his face flared up some more. It hasn’t gone away since this new stuff popped up. So Dr. still don’t think it can’t be corn. *gasp* I guess I have some anger. I told my husband tonight that I knew when Gage was allergic to soy and the Dr doubted me. BOOM big time allergic. I’m pretty sure I’m right this time too.
Not the most flattering picture of him but you can see how’s he broke out. It’s not eczema. It starts out as little dots, like on his forehead. Around his mouth the dots are becoming more dense in certain areas. I was told they are more environmental. He really doesn’t have any environmental allergies. Two came back positive: Russian Thistle and (get this) COCKROACHES! Who in the world is allergic to cockroaches?
Hopefully the GI Dr can give me some more insight as to what’s going on. I’m very nervous now about rice and oats because who knows what’s going to make his throat swell more.