LIVING

With EoE, Allergies, Asthma and a G-Tube

Food Challenge and Skin Prick Testing

Having passed their Thanksgiving scopes we needed to march forward. That meant Tinleigh wanted to do an apple food challenge and we needed to figure out what is making Gage so snotty.

Off to the allergist office we went. 20181126_085637.jpg

Tinleigh tested positive to apple at her very first allergy skin prick test as a baby. As soon as we removed apple baby food from her diet her gunky throat disappeared. We have never tried it since then. Tinleigh decided it was time. After letting Gage try potato at home and almost needing an epi pen I said we were done trying Ige allergic foods at home and we would do apple at the allergist office.

I had a discussion with Gage about finding out where his peanut allergy is. We thought maybe since he’s older he would grow out of it a little bit. That was our hope anyway. We also wanted to see if maybe he had started to become allergic to something he was eating a lot of like wheat or dairy. Lastly, he wanted to see where his chicken allergy is in hopes of getting to trial chicken.

Luckily, I got them both in at the same time. We started with Gage first. It was decided we would check his environmental allergies as well. We hadn’t done a full panel of environmental in years. I didn’t like doing that to them and if they’re stuffy they get allergy pills. It doesn’t really matter if we knew what it was. So that would be 60 skin pricks right out the gate. I then checked off all the foods we needed to check and that added another 40.  It was decided at the last minute to add hamster since we now have 4. so Gage got 101 skin pricks on his back. I love him. He is honestly the best patient I have. He always does as he’s asked, never flinches and has never fought. He held tough through all the skin pricks. I don’t think I could hold it together as well as he did.
20181126_092408.jpgSee that great big white spot? That’s peanut, he hasn’t outgrown it. So after Gage went through this we headed to the lab for a blood draw. The funny thing was beans, pea, salmon and potato all came back negative. We needed to check his blood levels on these along with the foods that came back positive.

20181126_101707.jpgWhile Gage’s back was welting up we started Tinleigh’s apple challenge. She was so excited, and I think a little nervous. But oh did she enjoy it. I think she grinned the whole 2 hours we were there. It went amazingly well. Tinleigh slowly ate an entire apple for the first time in 6 years. That’s huge for her diet. Apple is in so much stuff, you have no idea until you have to watch for it. Fruit strips were the first thing she wanted. We went right to the health food store and bought everything she had always wanted. Our rule for now is apple 4 days a week at a minimum. We haven’t had any issue meeting that requirement. We just have to keep it limited to one serving a day. I also requested Tinleigh have a blood draw for alpha gal. Since she started her airborne reactions to dairy and beef with no answer I wanted it ruled out. We also went ahead and drew for all environmental allergens on her as well since she had never been tested on any of them.

Gage’s results are that he’s allergic to just about everything outside except 5 molds, horses, dogs, mice and hampsters. For his foods he’s extremely highly allergic to potato and peanut. Followed by pea, egg and soy. Brazil nut, Almond, Tuna, beans and sunflower seeds are low. Luckily he was negative to chicken. However, salmon was negative on both tests and we just epi penned him on that a year or 2 ago. So we’ll attempt an in office food challenge on the chicken and move on to trial it for EoE if he passes at the allergist office.

Tinleigh’s results. Tinleigh’s Alpha Gal test was negative. Her beef and pork are positive though. Her blood work shows she is allergic to some molds, trees, grasses, weeds and cats. So basically everything. I’m relieved about the Alpha Gal test. After speaking with her GI doctor we have decided to reduce her steroids and see if she can continue eating all fruits and vegetables. We need her anger issues back under control. So instead of moving forward with a few more foods we’ll adjust the meds. She does get to keep apple.  In reality she only has a few more things she can add to her diet anyways. So game plan is to reduce steroids, scope in 3 months. We’ll see what happens!

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December 12, 2018 Posted by | Gage's allergies, LIVING, Tinleigh's allergies | , , , , , , | Leave a comment

Scopes x4

We scheduled all four kids to be scoped on the same day. Our crew filled the 4 spots the hospital would do that day.

The night before we made the 3 hour drive to the hotel. We set up a formula bar.camera 081Fed everyone a snack and attempted to settle in for the night. IMG_0724Layton luckily went right to sleep in her pack’n’play. Tinleigh slept with mom and I. Nathan and the boys took the pull out couch. I think Nathan got the short end of the stick as I noticed Gage basically slept on top of him all night.

We had to get up bright and early. I tried to keep track of the times things happened and do a blog post that way, it ended up too crazy for me to keep going back to log things in.

Here’s as far as I got

4:30am up and at em
4:37 i put my makeup on by the light of the microwavecamera 090
4:45 mom broke her diamond necklace in the dark hotel room and the diamond flew off
5:00 woke up kids
5:15 found missing diamond
5:30 headed to hospital
5:50 checked in all 4 kidscamera 099
6:20 got called back to our roomphoto 2
7:15 Layton got loopy medscamera 098
7:35 Layton went back
8:05 Tinleigh got loopy meds
8:10 Laytons done
Tinleigh went back
Gage got meds
9:07 Gage went back

After this I wasn’t able to keep a log. Once Gage went back Layton came out. Mom and I headed down to be with her and could hear her yelling as we rounded the corner. I knew I had another little Tinleigh on my hands. We walked into her curtain area where one of the nurses was trying to hold her as she screamed and tried to wiggle away. She was fired up. I noticed something in her mouth. I quickly asked what it was. The nurse said a goldfish cracker. WHAT?! I said don’t those have dairy in them? I don’t usually buy them because my other kids are allergic to them. The nurse looked at me and said no it’s just wheat. We scooped the cracker out of her mouth anyways, they handed her to me and then they all left. I grabbed the bag of crackers and sure enough there’s milk in the crackers. I looked down at Layton and right there around her ankle is her little allergy bracelet with one work on it: MILK. I was pissed and nervous all at the same time. I was trying to calm her down, watch for any signs of a reaction and trying to figure out in my head how to handle this situation with the nurses. Her regular nurse came in and I told her in a calm manner the crackers do have milk in them. I then told her if this would have been Tinleigh she would be having an anaphylactic reaction. The nurse went and said something to the pacu nurses about their mistake. I left it at that. Luckily Layton was fine. I called the patient advocate line the next day and took care of the situation. photo 5I then asked the nurse for a glucose bottle for Layton in hopes it would calm her. That’s what always worked for Tinleigh. Sure enough it worked for Layton as well. Layton didn’t like the heart monitors, her IV or the blood pressure cuff. She just wanted it all off. So we keep giving her little bottles of water and turned on the tv. I was able to keep her a little more calm until it was time to unhook her from everything. Once she was finally calm Tinleigh came rolling into our recovery bay. photo 4Tinleigh has a history of waking up crazy mad. The doctor now gives her a little something to calm her down. It works like a charm. She woke up happy and mellow this time. She saw Layton’s little bottle and instantly wanted one too. She may be 3-1/2 but if it keeps her happy then so be it. We entertained the girls for a while and then Gage came out. photo 3We propped him up in a chair and he was quiet and content. Didn’t want bothered only wanted some sprite. Layton was starting to want to run around by this point. So we found a wagon and took the girls for rides up and down the hall. It was still early in the morning and we were the only ones in the whole recovery area. photo 1(1)Finally Charlie came out. We propped him up in a chair as well.camera 171They boys sat drinking sprite and watching tv.  No one got sick. No one threw a fit, except Layton. It was a good day for scopes. The doctor came and spoke to us once everyone was done. Everything appeared good in each of them. Tinleigh had one little spot that looked like small ulcer so they biopsied it. Other than that all the inflammation was down. We know not to get our hopes up because that doesn’t always mean they’re eosinophil clear but it is a good sign that things could be better. We left the hospital by 12:30. We were all exhausted but it was over, we did it.

Friday afternoon I got a call from the doctor. Results were in. I felt numb. She asked who I wanted first. Layton of course! Guess what Layton scoped clear! She may also start on dairy. I couldn’t believe my ears. I think I’m still in shock. Does this mean she’s cleared for life? No, not really. She is on all food at this point in time and is scoping clear. It could flare in the future. We’ll pray that she doesn’t. Charlie was 4 before he started having issues and he was on a regular diet until that point. Let’s think positive though. IMG_0737Next up were Charlie’s results. He was clear all the way through. There were no more eosinophils in his belly either. We had removed soy and started him on reflux medication. The eosionphils in his lower esophagus were gone also. So we will keep him on the meds and off of soy going forward. Even though he doesn’t show any allergic reactions to soy his skin and blood test for soy are huge. So in this case allergy testing does work for him trying to figure out EoE. Charlie is going to trial beef next. He hasn’t had beef since he was 4 and that was the food that set everything into action for him as far as allergies and EoE go. He can only eat pork and fish right now and really needs another protein. Chicken is a trigger and he keeps testing positive to shellfish so beef it is. Fingers crossed he doesn’t have an allergic reaction. camera 039

Gage’s scope was better. All of his inflammation and furrowing were gone. So the removal of corn helped clear things up. However, he was still showing 10/12 eosinophils in some areas. Gage has always had a lower number of eosiophils since having a feeding tube. The highest it’s ever been though is a 9. We don’t want to see these numbers in a steady climb. Cauliflower was the only thing he was trialing. I mentioned to our doctor he has been complaining of his throat burning. So we are going to let Gage keep cauliflower and start him on reflux meds. We are hoping maybe he has some reflux going on and this is why he’s showing low numbers of eosinophils. We will let him take the meds for 2 weeks before letting him start a new trial. His new trial will be broccoli and watermelon. We will scope him at the end of July. photo 1

Tinleigh failed her food trial this time around. Although she didn’t have any visual signs of EoE her numbers were 10/20. So we have to remove bananas and squash from her diet. The doctor is letting Tinleigh keep Enjoy Life Chocolate chips because they are just cocoa. We are going to pull these 2 foods from her diet for two weeks then she will trial oranges and sweet potatoes. Tinleigh will get scoped at the same time as Gage.

For both Tinleigh and Gage if they have high numbers at their next scope we will have to dial things back and get them to a clear scope before we can continue to move forwards. So i’m really praying things straighten out for them these next two months.

We’re very happy with how things are going for the kids.  A little sad Tinleigh has to take away bananas and squash but she still gets to move forward. It’s all just part of how crazy this disease is.

May 30, 2015 Posted by | LIVING | , , , , , , , , , , , , , , , | 1 Comment

Our EoE video

I’ve been wanting to do a video for a few years now and have never found the time to do it. Even now I’m typing one handed and feeding Layton. I stayed up until 2am last night after the kids went to bed and got a video made!! Then of course I had issues converting it and uploading it.

Here it is! It shares a quick glimpse of our journey with EoE from January 2010 until today.

EOE

May 23, 2014 Posted by | LIVING | , , , , , , , , , , , , , , , | 1 Comment

Charlie’s test

Charlie had his turn at the allergist. I hate putting him through it. He absolutely fears needles. He’s had some bad experiences that are just forever in his mind. The night before I told him we were headed to the allergist in the morning. He started crying. I told him Tinleigh did it and Gage did it. I also told him Gage didn’t even cry this time around. Which, he didn’t, but they did it on his arms and there weren’t too many. Gage assured Charlie it wouldn’t be bad. They always try to comfort one another with kind words.

After dropping Gage off at school Charlie and I made the hour drive to our new allergist. Daddy kept Tinleigh because I knew it probably wouldn’t be fun in a tiny room with an upset Charlie and screaming Tinleigh.

We arrive at the office and are called back to the room. Charlie is talking the nurses ear off as he usually does. We get in the tiny room and he freaks. We assure him the needles won’t happen quite yet. Then I see the doctor. We discuss what we want to test for. He leaves the room and Charlie makes his move. I knew he was scared and I didn’t blame him. I promised him a milk shake when we were done and we talked some more about Gage and Tinleigh being brave when they did it. He came out on his own. Thank goodness. The nurse comes in with trays of vials. My stomach dropped. She asked Charlie to hop on the table and take his shirt off. There were too many to do on his arms. Then my chest got tight. She showed Charlie on his hand what she was going to do. He begged to see the needle. I explained she had to keep it clean until it was time to use it. We got him on his belly and I asked her if she had a friend to come help. I knew someone would have to hold his legs. She quickly grabbed a friend and went to work. Charlie was so nervous, he kept trying to peek over his shoulder. We assured him she wouldn’t get the needle out until she tells him. I had the dvd player right in his face to try to distract him. It didn’t work. Then it was time. He had 66 drops of liquids on his back. That meant 66 tiny needle scratches. I held his little shoulders down and she went to work. It was horrible. She worked quick though and got it done in maybe 30 seconds. He begged her to stop and give him a break. I was glad she didn’t, I don’t think he would have let her finish. Wow did he welt up. We retested him on every inhalant. That would be trees, grasses, molds, animals and dust. He is allergic to EVERY inhalant but one mold. EVERYTHING. The only foods we tested him on that he’s currently eating were chicken and oats. Chicken was positive, as it was before, and oats were negative. Beef and soy are now negative which was a shock. Eggs are now testing positive, when in the past they were negative, but he doesn’t eat them because of getting hives. All nuts and all fish are still positive, strange because he’s eaten lobster and shrimp just fine. It’s all a jumbled mess. So what do we do? His biopsy numbers are low and could simply be from the reflux he’s been having. Then again it could be from the chicken he’s eating and he’s starting to flare. Do we feed him beef when it made his lips blister before? What if beef is what made him flare in the very beginning?

It’s just all a risk. So Nathan and I decided we’re taking away chicken, keeping him on his reflux medicine and slowly reintroducing beef. We’ll keep him this way for the next 6 months and then re-scope him. If he starts having issues then we’ll remove the beef and get him scoped sooner. I won’t allow him to eat beef at school or a McDonald’s burger quite yet, but at home with mom and dad it will be allowed.

November 6, 2012 Posted by | Charlie's allergies | , , , , , , , , , , | 3 Comments

Bad scope

Gage was recently scoped. We knew ahead of time it wasn’t going to be good. We were having troubles getting him to eat. He was “gunky” in his throat a lot while he ate. He even complained of potatoes in his ears when he ate. There were even a few occurrences of him having a reaction to his dinner when it was made from scratch, 100% safe, and he shouldn’t have been reacting to any of it.

Doing this scope with out his side-kick, Charlie, I could tell Gage was nervous by himself. He was a trooper though. No tears, no whining, he did as he was asked and made it easy on everyone. I think me staying calm helps him to stay calm. I always use distraction techniques too. Talking about the positive of why we do it. A treat he might get to have after we’re done. Things like that. They wheeled him away in a wagon in his giggly loopy state of mind. Forty five minutes later I met the GI doctor in a tiny room. Gage’s esophagus is covered in white. I think it’s probably candida but it could be eosinophil abscesses. There is fibrosis and linear furrowing. He is inflamed. His stomach and small intestine do look good though.

*sigh*

It’s like you know it’s bad, but you don’t really want to hear how bad.

So I gather my thoughts while I wait on the biopsy results. Well he’s off of everything he’s ever tested positive to. The one thing he hasn’t tested positive too but most kids with EoE respond to the removal of is dairy. Okay, so we’ll remove dairy. We’ll also have a skin prick test done on all foods to see where he is on those since it’s been a while since he had them tested.

That Friday the GI nurse calls. The doctor would like a meeting with you. Strange, she’ll usually call me herself. Gage doesn’t have candida, he has eosinophil abscesses. His entire esophagus is covered in clusters of white blood cells. His counts are about the same as they were in December staying at 50+ in the mid and lower esophagus. ugh. I inform the nurse we’re getting the skin prick test done the following week and we can meet with the GI doctor Friday.

That brings us to today. We had the skin prick testing done. I hate it. He hates it. I somehow manage to talk Nathan into going with us. (YAY!) We talk with the allergist then the nurse comes in with the tray. I don’t see any caterpillars. She says she wants to do it on his arms. I see a big needle. My heart starts racing and I panic. She assures me if he doesn’t take well to this way then we’ll do it on his back. He holds his little arms out as she instructs and she gets busy. He replies “that didn’t hurt” over and over. Phew. Towards the end a few were starting to hurt and he was itching before she was even done. I had taken in millet flour, sorghum flour, coconut flour and xanthan gum to test these since he eats these all the time. I could instantly see these spots getting red. The nurse even commented on them. I lost it. I had to leave the room. I let the tears flow a minute then sucked it up and headed back in. Nathan of course jumped on me to suck it up and not make it worse for Gage. I knew that. I blew on his little arms to help with the itching and watched the welts grow. The allergist came in before the time was even up and just shook his head. Thanks doctor. So he started marking things down. We quickly realized they didn’t have a test for potato on his arm and the nurse was sent to find some. We got that on there. Thank goodness we did. The results of this test are so frustrating.

Old test are things that were positive and he is not eating. New test are the things that were positive along with new foods. They didn’t have a few of the foods so I have NA listed on the new test.

Old test                                                 New test                                             

Beef                                                        Beef

eggs                                                       eggs

soy                                                         soy

rice                                                       NA – doing blood test

seafood/fish                                        seafood/fish

peanuts/tree nuts                              peanuts/tree nuts

peas                                                      NA – but in the nut legume/nut family

mustard                                              NA

celery                                                  0

sesame                                                0

wheat                                                   0

oats                                                       NA – doing blood test

corn                                                      0

potato                                                   potato

pork                                                       0

                                                            millet

                                                             sorghum

                                                            poultry

He’s never tested positive to dairy and still is not. The last 3 are listed in the new column are things that are in his everyday diet. So it’s no wonder he’s such a mess. However, the foods wheat, corn and dairy are typically taken out of an EoE kids diet even if they don’t test positive to them to help them get clear. I took those things out and replaced them with what he’s now allergic to. He’s still not testing positive to dairy so why should I take it out? Or should I because so many kids clear up once it’s removed. You would think just removing what he’s having an issue with and putting the other foods he’s zero on now would be the solution. I hope the GI doctor see’s it that way on Friday. We are doing a blood test on milk, wheat, chicken, potato, corn, shrimp, rice and oats.  His shellfish was screwy. Shrimp was very positive but nothing else was. That’s not common. So it’s either a false positive or false negatives on the lobster, crab and clam. Who knows. He told us we really need to stay away from beef as it is very high, along with egg, peanuts and soy.

Not the cut and dry answer I was hoping for but at least there’s some changes we can make.

Friday’s appointment can’t get here soon enough.

August 22, 2012 Posted by | Gage's allergies, LIVING | , , , , , , , , , | 5 Comments

Patch Removal – day three

The boys woke up and remembered today was the day they get their patches off. I woke up with some pretty strong anxiety about how bad it was going to hurt them. Even though a few came up in a few spots this stuff was like super glue.They have mom take it off one hour prior to the appointment because the tape can irritate their skin when you take it off. I had to tell Charlie 100 times that we would eat lunch then take them off and head to see the doctor. Noon rolls around and I ask who wants to go first. Charlie is so excited he wants his off first. So I give him a sucker and wedge him between my knees. I had him bend over one knee so that his skin would be pulled tight. I grab a corner of a patch and RIP! Charlie jumps up and starts crying. FUCK. 20 more to go. So Gage runs and gets Charlie’s yellow (blankie) and we go at it some more. Charlie jumps every time and starts crying more. I try to stay calm and try to convince him if he stays put we’ll get this done quick. Gage in the mean time has told me no way am I taking his off. UGH.  Then I hear Sponge bob. I hate that little yellow man but he might be my life saver in this instance. So we move to the family room. I sit on the coffee table and get Charlie between my knees again. He can see the tv, has his yellow and I have promised another sucker when we’re done. Every single patch hurts him. Some spots of your back are more sensitive which made it hurt worse. This was horrible. Gage still telling me “no way, my not gonna do it.” We approach the last 5 and do a countdown. DONE! With a huge sigh I looked at Charlie’s poor little back.  Having never done this before I had no idea what to look for. I did see a few hives but it really didn’t look that bad. Onto Gage.

Poor Gage. After watching his big brother try to be tough he just didn’t want to do it. So I let him pick out a sucker and we went to the family room where Sponge Bob was still laughing his annoying laugh. I told Gage to get his froggy (blankie) but he told me no, he was tough. Aww. So between my knees he goes. I rip the first one off and he sort of giggles a nervous laugh and again says “I tough”. I asked if he wanted froggy and he said no, so on we went. He squirmed, winced and grunted but never shed a tear. My 3-year-old is TOUGH! Apparently his skin is more sensitive to the tape. Just made me want to cry when we were done, they were brave and let me do it. I was just glad I didn’t have to pin them down and have them screaming. They both did it and it was over, time to head to our appointment.

Since it took a tad longer than I had expected we were running late. I got them in the car and just grabbed Gage’s tennis shoes. When we got to the hospital I went to put on his tennis shoes and I had grabbed his left and Charlie’s left tennis shoe. DAMN IT! Luckily we had brought the girl boots to return them on our way home. So he got to wear them.

We got right in and the nurse had them put on gowns. I love how cute they are in them. Circumstances always suck when they wear them though. The doctor comes in shortly after we have our gowns on and the boys both immediately ask if they’re going to get needles. Oh what have I done to them. The anxiety they must feel each time I say we’re going to the doctor. The doctor and I both assure them no needles today. So he takes a look at their backs then explains to me what he was looking for. He also informed me that he reads their backs at 48 and 72 hours. So still no baths tonight. I didn’t really pay a whole lot of attention to what he found because he said it could all change by tomorrow. So the boys each get stickers and we’re done for the day! Off to the boot store.

We take the boots in and I explain how I had accidentaly bought girl boots. The good ol’ country folk working there got a good laugh and told us to go find another pair. So as I’m on my knees looking at pre-schooler boots a man approaches me and asked if I needed help. Um, yes, as I’m 9 months pregnant crawling around on a store floor. I told him we needed the widest pair of boots he had. He told me it was my lucky day that he had just gotten in a load of wide width kids boots! Said they had never had kids boots in widths before, I told him I already knew that. So he went and got us a pair. They’re western boots with the pointed toe. Gage slipped them on and LOVED them. He was so excited. So we took them up to the counter and they were $10 cheaper than the other pair we had. Turned out to be a great day after all!                                   That night I again stood them in the tub and gave them a sponge bath. I then laid them on the counter and washed their hair in the sink  along with washing their face. All clean and ready for our last day!

September 16, 2011 Posted by | Charlie's allergies, Gage's allergies, LIVING | , , , , , , | Leave a comment

Keeping the Patches On – day two

Upon waking I immediately check the boys backs. They turn into the sweatiest little things when they sleep. We had turned the air down to 70 in hopes they wouldn’t sweat as bad as they normally do. Everything looked good. I had to add a bit more tape to each of them but so far everything was still in place.

My plan for the day – to keep them busy but not running around getting all sweaty and dirty. Keeping the tape dry also means no shower. Ew.

We get dressed and eat breakfast then head out to run errands. After the errands we head to the cowboy store for some boots! They were so excited. They both have wide feet so they haven’t been able to get any because they all tend to run so narrow.

We did finally find a pair for each of them. They couldn’t have been happier!  That is, until Daddy got home. Daddy looked over their boots then wrote something on a piece of paper and handed it to me. “Do you know you bought Gage girl boots?” UGH! I was so frustrated. He got the first pair he tried on, loved them and they were wide enough! How do you know I asked?  He then pointed out to me on the bottom it said Lil Flirt. There was also a scalloped edging across the toe. Not very manly.

So we explained to Gage that we accidentally got him the wrong pair and we would get him different ones tomorrow. He was totally fine with that! Phew

It was definitely the longest afternoon of my life. Trying to keep two little boys from wrestling, wanting to play outside in the heat and keeping them entertained and calm. I felt bad for them. They have so much energy it was hard to contain themselves.

That night I stood them each in an inch of water in the tub and did my best to get their stink off. It was hard for Gage to understand that he couldn’t sit down. He’s still on the steroids for his wheezing so he’s extra irritable, made for a fun sponge bath.

They both made it into bed with out loosing a patch. I was so proud of myself. 🙂

16 more hours till the patches come off.

September 16, 2011 Posted by | Charlie's allergies, Gage's allergies, LIVING | , , , , , , | Leave a comment

Flu shots suck

Poor Charlie. He has not tested positive to eggs, however I have seen him get hives after licking a hard-boiled egg. Recently he has gotten an itchy mouth after eating a baked good with egg in it. So we try to avoid eggs. Last year Charlie had the flu shot. This was before any of his allergies we going crazy. So this year we thought it would be a good idea to do a skin prick test and make sure it’s safe for him. Since Gage and Nathan cannot get the flu shot we need to try to keep it out of the house. Gage typically ends up in the hospital from a cold so we don’t need anything worse.

Off to the allergist Charlie and I go. (I honestly just felt a wave of tired fill my body and don’t really want to finish this story. So……) 

Charlie had a very rough time. He is honestly terrified of needles – is there a phobia for that?  He hid under the chair, took 3 nurses and myself to get things done. I hate allergies. He did get the flu shot.

Sorry this blog ended like it did. I just couldn’t type the whole story, hurts my heart for Charlie.

I need a beer.

November 4, 2010 Posted by | Charlie's allergies | , , , , , , | Leave a comment

Are More Allergies Possible?

Took Charlie to the allergist today to get tested for mustard and eggs. We decided to do the whole food panel and seasonal allergies to get it out-of-the-way. No sense in putting him through more testing down the road. Plus Charlie is drama about somethings so I knew this wasn’t going to be fun.

Nathan holds Charlie on his lap while the nurse starts pricking his back. The first group of 8 he was ok with. The second group he started to cry and by the third he was screaming. We had to grab his hands and Nathan had to hold him tight. Poor Gage didn’t understand what was going on. I look over at him and he’s bawling at the site of his brother in pain. I’m trying not to cry and trying to get ahold of Gage’s hand to help console him. HORRIBLE

Once it was over Nathan takes Charlie to the play room. I have to change Gage’s diaper. He repeats over and over in his toddler language “needle?” 

Once the timer beeps we all head back to the room. The nurse holds Charlie on her lap as she measures and reads off a bunch of numbers to another nurse. The nurse writing says to me “You guessed mustard, right?” Right I answer. She says “mustard is one, and beef….” I just sort of ignore the rest of what she said. I could see he had a lot of hives but really didn’t want to believe them. The Dr comes in, looks over the paper then looks at Charlie’s back. He then starts to read: Soy, all nuts, all seafood, beef, chicken, cantaloupe, pineapple, celery, corn, green beans, onion, pea, garlic, mustard, oat and rice. I was head down, in complete tears and had to leave the room. So I gather myself and step back into the room. Nathan at that point is asking about the research they do in Cincinnati Ohio. The Dr said he is going to refer us there. He doesn’t want to come out and say Charlie has the same disease as Gage, but with Nathan’s food allergy history and the fact that Gage has it… We’ll get Charlie scoped and see what happens.

Charlie also has seasonal allergies to all pollen, outdoor mold, cats and dust.

May 13, 2010 Posted by | Charlie's allergies | , , , , , , , , , , , , , , , , , , , , , | Leave a comment

   

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