LIVING

With EoE, Allergies, Asthma and a G-Tube

We’re EATING!

It is awesome that Gage and Tinleigh are eating now. As of today Gage has added apple, buckwheat, corn, pickles / cucumber, VeganEgg, squash and oats. Tinleigh is up to banana, corn, squash, potato and pear. Tinleigh tried pickle and coconut but had a reaction to both. When she tried pickle her bottom lip swelled up and with coconut her throat felt funny she told us.

PicsArt_03-13-09.45.23What I completely forgot about was how hard it is to cook for all the people! I try to make fun things for them to eat so they get the full spectrum of foods with what little they have. I’ll tell you what though, it’s tough. Every recipe is 50 different ingredients. The dishes pile high and then it feels like you’re starting all over again.

I have successfully made Gage some buckwheat cornbread. Just to see the smile on his face when he eats it defiantly makes it all worth  the while. He’s also had buckwheat pancakes and buckwheat apple cinnamon muffins. I think he’s in heaven . I tried to make Tinleigh some banana coconut muffins but those bothered her throat. She’s loving corn and we had totally forgotten about corn pasta! Huge hurrah for that. She keeps telling me she is just having the best days of her life because she can eat different foods. Makes my heart smile and break all at the same time.

I’ve found them dried fruits to snack on along with safe fruit leather. Gage can eat crackers and they both have noodles now. It’s all so exciting to them. Potato chips, corn chips and popcorn! Things every kid should be able to enjoy.

20170313_131333On the new news front we had Layton’s allergies tested. She was so cooperative and brave. Poor thing had no idea she was about to be pricked 50 times. She didn’t even cry out. She did hit me twice when it was done though and that’s okay. Lucky for her only 3 things showed up; clam, oyster and flounder. She’s eaten fish sticks and snuck some of Charlie’s shrimp before but never had a reaction. Her testing was so small they said just use caution. Well I don’t think she’s a huge oyster fan so I doubt we’ll have any trouble telling her no. We still plan to scope her in April and see if anything is going on in there.

Tinleigh had a huge reaction to playing with play dough so that’s completely out now. She’s had smaller reactions here and there. Sometimes even played with it and didn’t have a reaction at all. This last one really got her so I told her no more. She wishes play dough was never created.

Tinleigh’s airborne reactions seem to be under control. She did have some freak eye incident a few days ago. Her eyes just swelled up. I have no idea why. We threw her in the shower and gave her some Benadryl and she cleared up. You never know who’s going to react to what here.

What I’m most excited about soon is spring break. We LOVE the beach and the beach loves us. It will be even more awesome that this year we can actually go out to eat. We never do because it’s just too hard to eat in front of them. This year I can pack them food and everyone will get to eat together!

March 13, 2017 Posted by | Gage's allergies, Layton's food exploration, LIVING | , , , , , , , , , , , , | 1 Comment

Doing great!

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Little miss turned 9 months recently. I’m feeding her every baby food available minus those with dairy or fish. Shes thriving! She met with GI this week and the decision is we will wait until she’s showing signs of the disease,  such as choking. We’re keeping our fingers crossed that Layton may escape the issues the other 3 carry.

December 12, 2014 Posted by | Layton's food exploration, LIVING | , , , | Leave a comment

Baby meets the big wide world of food

Little Layton is 6 months old! karas camera 526

I just can’t believe how fast time is passing. I don’t know if it’s my age or that I realize she is my last baby, but I am really soaking in everything she is doing. Paying close attention to her new accomplishments each and everyday. Maybe it’s because being my 4th I know it’s going to go by so quickly I don’t want to miss a beat.
We have moved, yet again, and are now settled for the most part. School is in session and the girls and I are adjusting to life with out the boys all day long.
It is recommended that between the ages 4 and 6 months babies should start baby food. Layton is on an elemental formula and to be honest I was am scared to introduce food to her. My fear is that she’s going to have an allergic reaction, then down the road we will discover she has EoE. I hate that she will face those her whole life. A small part of me prays that even though she’s not able to tolerate regular formula just maybe she’ll escape the world of allergies that consumes my family.
Since moving we are able to return to a previous GI doctor that we had in the past. I’m very happy about this. Layton has her first appointment with this GI doctor in October. She has her first allergist appointment in November. Prior to those appointments we want to have foods started to see where Layton’s path will seem to be going. So we started Layton on baby rice cereal. I mixed it with her neocate infant formula and we went at it. Being that this was her first exposure to rice I knew the chances of her having a reaction were smaller.

I was still very nervous.

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I had also forgotten how long of a process it is to feed a baby for the first time. karas camera 570karas camera 567Of course she loved it and was so happy with the whole situation. karas camera 568

That’s how Layton’s personality is. karas camera 577

She’s ALWAYS happy. We made it through the entire tablespoon of cereal and no signs of anything being rejected. About 10 minutes after eating Layton coughed. Then she coughed again. With out looking at each other Nathan and I stopped what we were doing and just stood there looking at her, waiting. She coughed a few more times and I told her to stop it. Not that she understood me, just because I didn’t want this to turn bad. Luckily it turned out to be just a cough. So we’ll try more cereal today and pray that the second exposure doesn’t turn up any sort of reaction.
We’ll feed her plain cereal for 2 weeks then move onto something else. I’m not sure what route I’ll take on the baby food. It’s going to be a long nerve-wracking road.

September 8, 2014 Posted by | Layton's food exploration, LIVING | , | 2 Comments

   

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