LIVING

With EoE, Allergies, Asthma and a G-Tube

Five Year Anniversary

Today I told Tinleigh it was her 5 year tubie anniversary. She looked at me funny and said “I dont even know what that means.” I explained that 5 years ago today she had her feeding tube put into her belly. She was still very confused. I asked what part didn’t she understand. She said “I thought I was born with it”.

That caught me off guard.

So tonight I showed her my posts about when she had her tube placed. We read over the day she got the tube and the days following. Not a memory of any of it in her memory bank. I am SO thankful I’ve written this blog and was able to go back and show her. I had done a small series on what it’s like having your toddler get a feeding tube.

Today Tinleigh thrives. I wouldn’t say she loves her mic-key button, but she is at peace with it. I am proud of her. I admire her. She has a warm heart for everyone. She has shown us, just like Gage, that a tubie can do anything. DSCN3970Day one

karas camera 284

Swimming

phone 489

Dancing

20170909_121122

Knows how to have fun with her woes.

20180825_125006.jpg

Fishing

20180423_182408_1524525854789.jpg

Softball

20180304_134100.jpg

Bounced

20180626_154715.jpg

Learned to ride a bike

20190114_223804.jpg

Sported a 2 piece!

20180115_115558.jpg

Played in the snow

20180724_135648.jpg

She genuinely enjoys life and lives it to it’s fullest. Her allergies and feeding tube don’t stop her from finding the joy in the life she was given.

January 14, 2019 - Posted by | LIVING, Tinleigh's allergies | , , , , , , , ,

No comments yet.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: