LIVING

With EoE, Allergies, Asthma and a G-Tube

A Twisted View

20181206_171112.jpgHow does having children with allergies and EoE effect their siblings? To be honest I didn’t really think about it. I assumed things were running along just fine. Layton doesn’t seem to have any anaphylactic allergens. She does have some strange things she’s allergic to. Starburst and anything ranch send her into a coughing asthmatic fit. Tomatoes and oranges break her face out, make her throat and mouth itchy and her tongue gets bumps. She’s never had any nuts or shellfish. Scrambled eggs make her vomit. She has only tested positive to cherries so we stay clear of those. Occasionally, Layton will eat a little bit of something then complain of belly pains or refuse to eat the rest of it along with future servings as well.

Layton is aware of her allergens and never tries to eat them. She even reminds us sometimes if we accidentally try to give her something she shouldn’t have.

Something I have noticed recently is Layton will say I don’t want to trial that.  I know she has picked that up from my conversations with Gage and Tinleigh. I don’t think she really knows what it means. I have never explained EoE to her.

The thing that caught me off guard and prompted this post was a conversation between me and the preschool head. After school on Tuesday I was talking to the head about their Thanksgiving lunch that week. We discussed me putting safe dessert in a baggie with her name on it. Then I proceeded to ask what they would be serving. As she was listing everything I was nodding in agreeance that everything would be fine. Then Layton spoke up. She said “No, I don’t want to trial anything new let’s just pack my lunch”. She was nervous to eat what they were providing. Oh my gosh! What have I done?! While keeping her safe from the few things that cause her little reactions I haven’t explained anything. When Gage was this age we were explaining to him he wouldn’t be able to eat anymore food and he needed a feeding tube. I now have a paranoid preschooler that’s afraid to enjoy food the way “normal” kids can. I packed her lunch for their Thanksgiving feast so she would feel safe, but we have a lot of talking that needs to be done.

After taking Layton along to the allergist and watching Gage have skin prick testing and Tinleigh do a food challenge to an apple I think I may have scared her for good. I had the girls leave the room when they did Gages skin pricks but she came back in to watch them develop. So her new fears are skin prick testing and she keeps asking when she’ll go trial food at the doctors office. 

Does your non-allergic kid have fears about allergies?

Do they understand what life is like for your allergic child?

How much do you explain at age 4?

Layton’s little list is legitimate, but really nothing compared to her siblings. I need her to understand more about what is going on in our family without scaring her too much.

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December 8, 2018 - Posted by | daily life, Layton's food exploration, LIVING | , , , , , , ,

3 Comments »

  1. Aw, poor Layton. I have 2 kids with allergies and 9 who don’t have any. One of my allergic kids also has EoE. My other kids don’t seem fazed by it at all and are not at all concerned about their own health. They do feel for their siblings though and seem to have a good understanding of the situation.

    Like

    Comment by Ahuva | December 9, 2018 | Reply

    • I wonder if part of it has to do with age and birth order. Also, its not like we can go a day without using allergy related terms because the allergic outweigh the nonallergic here. So she’s constantly hearing certain phrases. Maybe if i only had 1 allergic kid she wouldn’t be this way. Whos knows?!♡♡

      Like

      Comment by livingtheallergylife | December 9, 2018 | Reply

      • Yes, I would imagine that having more allergic family members than not would make being allergic seem like the default. That could cause a lot of confusion in a child that young.

        Like

        Comment by Ahuva | December 10, 2018


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