LIVING

With EoE, Allergies, Asthma and a G-Tube

Seeing Straight

20180121_120706.pngI was very nervous when I first noticed Tinleigh’s eyes turning outwards. I still don’t 100% understand why, but I’m leaning towards connective tissue disorder to blame. We won’t know for sure until we do genetics testing in August.

20180328_171447.jpgWhen I found an eye doctor that looked past her vision being 20/20 and told me we could try to fix her eyes I felt some relief. They tested Tinleigh’s eyes and came up with her exact diagnosis, intermittent exotropia and oculomotor dysfunction in saccades, and what needed to be done. Although her eyes are 20/20, they can’t work together to focus. Think of holding a book in front of your face, both eyes focus on it. Tineigh’s eyes will focus, then one eye drifts and Tinleigh needs to move the book closer or further away so the eyes will refocus. When you watch her read she constantly is moving the book in and out to keep refocusing.

20180328_172548.jpgI was curious what vision therapy was. Once I saw her do it for the first time it totally made sense. It’s literally a work out for your eyes. If you’ve ever been to physical therapy, you know you work a specific muscle group to fix whatever your problem is. That’s exactly what vision therapy is. We are working Tinleigh’s eye muscles to make them stronger so they can work together as they should. Tinleigh only actually attends therapy once every two weeks. We are then sent home with her own folder and list of exercises. We must do these exercises 5 days a week. They’re short, sort of fun and super easy. The first few times she did get a headache but those have stopped.

Will it work? We hope so. We were told that she may do great and be done in a few months. It just depends on how her eyes react to treatment. It does happen that as they grown, she could have a growth spurt and may have problems again. We would just repeat therapy. Worst case scenario if her eyes continue to stray outward and she has troubles with reading and school work then we would be facing eye surgery. I don’t think it will come to that though.

 

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April 1, 2018 - Posted by | daily life, LIVING, Tinleigh's allergies | , , , , , , ,

1 Comment »

  1. We went through vision therapy for a year with our oldest. He had binocular vision disorder and lazy eye, where he could not see anything directly in front of him, and one eye would “shut off” to accommodate and drift outward. With every growth spurt we have taken out our binder from vision therapy and done the exercises to restrengthen the muscles. The bad news for us was that insurance didn’t cover vision therapy, so I hope yours will be better. Hugs to your little ones. ❤️

    Like

    Comment by Missy | April 1, 2018 | Reply


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