LIVING

With EoE, Allergies, Asthma and a G-Tube

Buckwheat, Not Wheat

20170225_130105Gage’s new adventure for the week is buckwheat. You have no idea how excited he is.

Buckwheat isn’t actually related to wheat at all. It’s actually in the rhubarb family. Even though Gage wants to eat wheat while on the steroid I just don’t feel like it’s a good idea. So we’ll give buckwheat a try for a while.

We found cereal, noodles, crackers and groats at the health food store. He is loving it all and is so stoked.

Last week we started a trial on VeganEgg. It’s an eggless substitute for egg made of algae. It stinks like sulfur yet is amazingly egg like. He can actually have scrambled eggs. How awesome, yet strange, is that to see him eating an “egg”? Gage has a very anaphylactic allergy to eggs, this picture is so surreal. 20170218_171801I think VeganEgg is going to be a big changer for him. It will really help in our baking once we get some more ingredients added into his diet. I need to strategically plan it out though.

I’ve tried making him oatmeal cookies.20170218_181333 They’re pretty basic, but I’ve failed. Not once but twice on appearance.20170224_195117 It’s so frustrating. He loved them though. Probably because it’s a “cookie”. He didn’t love the second batch as much as the first batch. That happens. I think we need a better flour. I need to get my hands on some buckwheat flour and see how it does. Anyone got a good oatmeal cookie recipe using: oats, oat flour, sugar, veganegg, tapioca starch, enjoy life chocolate chips, cinnamon, brown sugar and baking soda?

Here though, is why I cringe at the thought of Gage and Tinleigh eating. We’re back to the crazy high grocery bills at the specialty food store. It’s totally worth it though to just see them eating and smiling. 20170225_182407Eighteen items at $75? Plus the$110 I just spent on amazon pantry for them. These will last them a week tops. Phew, mommy better log some more hours for work!

Kitchology – allergy friends and non-allergy friends find some new favorite recipes custom tailored to your diet needs!

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February 26, 2017 - Posted by | LIVING

3 Comments »

  1. My heart breaks for you. I have a nephew with EOE and currently I’m afraid my four year old is showing symptoms. He’s complaining of something stuck in his throat, tummy hurting, and he has rashy bumps on his bottom that I always thought was heat rash or something. This disease terrifies me to my core. I don’t know how you manage. I pray you continue to find your strength in the Lord. Life here is temporary. As for other people understanding this disease and issues with school my sister knows all about it!! It’s hard to make people understand. She’s currently trying allergy shots for her son for his environmental triggers.

    Comment by BH | March 9, 2017 | Reply

  2. Also you mentioned how your daughters levels were still high after the one scope even though she’d been on no food. My sister has mentioned that might be due to the glucose/fructose in the formula? Have you ever tested her for an intolerance to that? That could explain her reaction to the formula. All the best to you!

    Comment by BH | March 9, 2017 | Reply


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