LIVING

With EoE, Allergies, Asthma and a G-Tube

Some people still don’t know!

I have learned a few things this morning

1 – When you say your child is allergic to everything, has a feeding tube, can only eat 4 foods and is anaphylactic to dairy, they don’t quite grasp what that means.

2 – Tinleigh is definitely allergic to wheat.

3 – Being scared of finding a new church is going to be as scary and hard as I imagined.

I dropped off each of the kids in their age appropriate room at church this morning before heading up to the sanctuary. I made sure the room was food free or that they were having a “safe enough” snack that they could be in the room with it. I felt good about drop off and the kids were so excited.

One of the first things I did when I got to the sanctuary was said a little prayer that God would watch over the kids and keep them safe this morning. Service ran long as it may at times. My phone never lit up with a message that I was needed and I assumed all was well. I picked the boys up first, they had a GREAT time. The boys then opted to get Layton next. She squealed with delight when she saw us. She had so much fun in her little room. Then we went to get Tinleigh. As I looked into the room and caught a glimpse of her face it looked swollen to me. I just stood there in the doorway staring at her trying to figure out if it was my eyes or if her face was swollen. I finally stepped into the room and got a good look at her. My heart sank.

wpid-20150920_121903.jpgPoor Tinleigh had three good size hives along with a ton of little ones all over her face. The teacher was helping her find something. Then she pulled the something out. She explained to me they made bread with flour and oil today. Dairy free she said. I felt horrible. I let Tinleigh down. I didn’t explain to the teacher the extent of things. The teacher obviously has no clue about allergies. The hives were VERY visible on her little face yet no one came to get me. I really wanted to cry, I felt horrible.

So today I want you to share this post and I want to spread the word of what an allergic reaction can look like. Also, please take it seriously when someone says they’re allergic to something. They could die.

What can happen during an allergic reaction? What does an allergic reaction look like?

  • Hives and swelling – these can be like you see on Tinleigh above. Red welts, itchy patches of skin that appear out of no where.
  • An itchy mouth. You may see someone pushing their tongue around inside their mouth trying to itch it.
  • Cough
  • Nausea or vomiting
  • Diahrrhea
  • Stomach pain
  • Runny nose
  • Sneezing
  • Itchy ears
  • Lips, tongue and/or throat may begin to swell
  • Trouble swallowing
  • Shortness of breath or wheezing
  • Turning blue
  • Feeling faint, confused, weak or passing out
  • Loss of consciousness
  • Chest pain
  • Weak pulse
  • Sense of “impending doom”

How a child may describe a reaction.
“This food is too spicy”
“My tongue is hot or burning”
“It feels like somethings poking my tongue”
“My tongue or mouth is tingling”
“My tongue itches”
“It feels like there is a hair on my tongue”
“My mouth feels funny”
“There’s a frog in my throat”
“There’s something stuck in my throat”
“My tongue feels full or heavy”
“My lips feel tight”
“It feels like there are bugs in there” (inside the ear)
“My throat feels thick”
“It feels like a bump is on the back of my tongue or throat”
Source FARE

epi1

Source FARE

Please share and please be aware. What if your child has a friend over with allergies? Would you know what to do? Would you know what is safe? Would you be able to spot an allergic reaction? Would you know to give Benadryl or epi pen? You can find a great emergency plan on FARE. Post it in your office, the church, the gym, anywhere!

What happens during anaphylaxis?

Anaphylaxis can happen with in seconds or minutes of coming in contact with the allergen. A flood of chemicals are released into your body by your immune system that can cause you to go into shock. The blood pressure with drop, airways will narrow and normal breathing will become hard to do. Your lungs could collapse. You may start vomiting. Break out in a head to toe rash. It’s very scary. I know, I’ve watched it happen to Nathan.

All I’m asking with this one post is that you share it. Help others who aren’t in the allergy world know what to look for so they can get help. We were so lucky today that Tinleigh didn’t ingest the flour. Just seeing those hives on her face tell me ingesting it would probably have been bad. I do not blame the sweet lady in charge one bit. I should have explained Tinleigh’s situation to her better. Tinleigh probably should have just sat with me during church. I’ve learned my lesson.

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September 20, 2015 - Posted by | LIVING

4 Comments »

  1. so scary all the time. We try to believe people have their best interests at heart. they do, but they don’t know how. Did you epi?

    Like

    Comment by Tamara | September 20, 2015 | Reply

  2. Don’t beat yourself up mom!

    Like

    Comment by carly | September 20, 2015 | Reply

  3. I’ve been there. My EoE son had 3 foods, apples, grapes and bananas, and people were confused why he couldn’t have banana bread, or caramel apples. *face palm* There will always be these blissfully ignorant people. Gotta keep spreading the word!

    Like

    Comment by Sarah | September 21, 2015 | Reply


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