LIVING

With EoE, Allergies, Asthma and a G-Tube

Our Halloween

imageI never thought it would end with an epi pen. I’m so cautious.
We started our Halloween festivities like most everyone does, by picking our pumpkins.

imageThen with caution, for Charlie, we carved them.

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Charlie has an allergy to pumpkins and with pulp contact breaks out in hives. So every year since he was able to help he has had to wear gloves. We have taught him the safety rules he needs to follow so he can join in the fun.

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Nathan always takes charge of the pumpkins and does a great job.

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This year the boys were really trying to do things on their own.

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I hate that they’re actually big enough to do it.

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When it came time to get the candles Nathan asked me if we had any. I hadn’t even thought about buying pumpkin candles. While trying to think if I had seen anything we could use while unpacking Tinleigh disappeared.  She returned with the most brilliant idea, birthday candles.

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I just love her.
So everyone got a birthday candle and we were set!

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I painted Laytons pumpkin teal and explained to the kids all about the teal pumpkin project. The boys really thought it was a cool idea.

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Before Halloween got here all 4 kids got the respritory cruds. Gage kicked it off with fever and wheezing. Followed by Tinleigh who got it the worst and needed oral steroids.

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Charlie’s throat swelled and we thought for sure he had strep.  Turned out he didn’t,  but his asthma did flare which was a surprise to me.

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Layton just got the sniffles. No signs of asthma yet. I will say I’m very nervous about how she’s going to turn out as each of the kids are worse in the order of birth.
On the day of Halloween the boys dressed up for school and had parties. The girls and I joined them at school so I could make sure they did not receive unsafe foods. Having 10 other parents I didn’t know in a classroom passing out food I didn’t feel the boys would get their safe food. The room moms had called me ahead of time to accommodate the boys, but it’s not their responsibility to make sure my kids stay safe. Having food, games and 25 kids to keep in check, I doubt making sure my kids get the correct snack was at the front of their mind. Gage was handed a couple things he couldn’t have. Charlie’s snacks turned out to be a bit different from what was discussed,  I’m very glad I went to both parties. After school I brought the kids home to rest a bit. They were way to excited though. I stuffed them all full of formula and food. Those that needed it had a breathing treatment. Then we got dressed and headed downtown to daddy’s office. In our area its more rural and people don’t trick or treat. I had heard the main street in a neighboring town really does it ip so that’s where we went.

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It’s been so warm here that we were in shock to have a 48° trick or treat night. The kids all had on layers under their costumes but we were freezing. So we decided we would give it a try and if we got too cold we would head up to the church and just do trunk or treat.

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Houses were decorated and the community was really into it. It was fun, but we were still cold. I think we did about 10 houses and decided we were done, but not before Tinleigh wanted her picture taken with this giant spooky tree. She was so nervous to walk up beside it, but grinned so big. It was too cute.

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I handed each of the kids a piece of candy when we got in the car and took their buckets. I didn’t see any teal pumpkins but im sure if we would have kept going we would have seen a few.
We drove up to the trunk or treat to finish up our night. The kids had a great time. Tinleigh was in aww at all the candy she had in her bucket. I was surprised and excited to see a packet of cherry kool-aid in her bucket.

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Its an elemental safe drink!
Home we went and the boys could not wait to sort their candy.

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Nathan had ran to the store since we had separate cars.
The kids and I arrived home, went straight inside and dumped their buckets on the kitchen floor. We sat in a circle and began to sort.

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I have the kids sort their candy so they visually know whats safe and what isn’t.

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Gage took extra caution at times and used his foot to get rid of things.

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I thought we were doing ok. No one was trying to eat anything and everyone was busy. As I’m looking at Gage I smelled a very strong peanut butter smell. I look around and look back to Tinleigh. I realize right in front of me, not 2 feet away, she had an opened mini resse’s cup and it was missing a nibble. OMG Panic flushed over me. I couldn’t think but I was in motion. I ripped off my costume. Grabbed my phone and dialed Nathan then handed the phone to Charlie. I quickly ripped off Tinleigh’s costume. She began to cry. I told her mommy wasn’t mad and everything would be okay. She cried that her mouth hurt and she began to itch her inner ears. This of course made me panic more. Trying to keep my composure I saw nathan pulling in and told the boys to run and get him. Of course they went running and screaming for him. As Nathan was coming in I had the epi pen in my hand and was pulling down her pants. She began coughing. Nathan said ok let’s do this. She was now beginning to vomit so I ironically grabbed a candy bucket for her to puke in. I then held her in a paralyzed position as Nathan shockingly jabbed her with the epi pen. The trick about an epi pen is you dont just jab and your done. You jab and have to hold it there for at least ten seconds so the medicine can drain out. To her surprise she screamed and tried to grab the pen out. I held her hands and tried not to cry as Nathan assured her everything was going to be ok. She continued to vomit up the toxic to her system candy and Nathan held her in his lap as I got her a wash cloth.

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I found the candy I had thrown in the sink. She had only taken a nibble.

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We know she’s anaphylactic to dairy but nuts are an unknown. She’s never tested positive to nuts. However, now that shes been exposed to nuts it might turn into a whole new game. During all this I could hear Charlie crying in the bedroom and I really have no idea what they were doing in there. Makes me sad though they had to witness their little sister go through this. Before Nathan jabbed her I asked them to leave the room. I didn’t want them to have a visual burnt into their minds.
Tinleigh was/is fine and since she was already on prednisone it worked out to her advantage.
Another Halloween in the books. I really wish it wouldn’t have ended so horribly. I’m trying to teach my kids hands on how to be safe and what to look for. If I would just remove everything that’s not safe how will they ever know for themselves? Food allergies are scary and even the most cautious situations can turn deadly.
A little shout out to Layton who chilled in her car seat happily during this entire candy situation.

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November 1, 2014 - Posted by | LIVING

4 Comments »

  1. I’m so glad Tinleigh is okay! Thank God you were right there, but I’m so sorry Halloween ended badly for you guys. I think you’re definitely doing the right thing teaching your kids what’s dangerous and what’s not, and any parent knows you can be right there next to them and they will still manage to fall and hit their head, or in this case sneak a piece of candy in their mouths.
    On a happier note, your kids are all gorgeous! And little Layton’s hair is too cute! All the best!

    Like

    Comment by Daniela | November 1, 2014 | Reply

  2. I have three children, 2 of which have asthma (like me), all three have some form of seasonal allergies, but only one of them has EoE. She was diagnosed in September, after 5 months of pain that was blown off by too many doctors. Our GI is amazing, and I thank God for her often. But despite being on swallowed Flovent and Prevacid she is still in pain. She is the sweetest, spunkiest ray of sunshine ever. She has a really high pain tolerance, and I know if she is choosing to stop playing and lay on the couch it’s BAD. She has always eaten like a horse even though she is the size of toothpick, but she stops eating now because “it hurts”. It has been a long time of pain. It is heart wrenching. But I am glad to have found your blog, and see that we’re not alone in this struggle. Thanks.

    Like

    Comment by Kat | December 22, 2014 | Reply

    • The steroids, which sounds like she might be on too much, just mask the disease. You have to figure out the food trigger to actually feel better. Steroids won’t always cover all symptoms. I personally only like my kids to use them if we have to. Like if a scope is super bad. Just to help get the inflammation down and help them get back to normal.

      Like

      Comment by livingtheallergylife | January 1, 2015 | Reply

  3. […] is anaphylactic to dairy. You might remember our Halloween episode. I have a tablet with a keyboard I let the kids play on. Yesterday Charlie got a few drops […]

    Like

    Pingback by Crying over spilt milk « LIVING | January 16, 2015 | Reply


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