LIVING

With EoE, Allergies, Asthma and a G-Tube

Life Changing

Tomorrow is Tinleigh’s big life changing day. It is life changing. We have no idea how long she will need this feeding tube, it could be for life. Though we pray it’s for a short few years.

DSCN3871I’ve been on support boards and read the question many times, “My little one is getting a tube tomorrow, what should I expect?”. I am going to do my best to record every detail we go through. She is at a horrible age, two. She wants to do everything herself and is quite feisty.  Absolutely hates to have an IV and screams after procedures until we take it out. We know a little bit of what to expect having gone through this with Gage. However, he was 4 and a very mellow little guy. We know it’s very painful for them, I dread that for her.

DSCN3784Our hospital stay should only be until Saturday at the latest. Today I’m packing a few toys and things to hopefully keep her occupied. What do you pack for a two year old that will be laying flat?

DSCN3779If she rests a lot at the hospital I’ll get my posts started then. If you don’t see anything for a week then assume it’s not going so well.

DSCN3585

Please pray for Tinleigh’s surgery to go well with a smooth recovery.

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January 8, 2014 - Posted by | Tinleigh's allergies | , , ,

8 Comments »

  1. Oh Kara…I will be thinking of and praying for all of you tomorrow, especially that little T will adjust quickly and smoothly to the new tube…I know it won’t be easy, but as I’ve said before, you are Super Mom…you got this, just remember to lean on friends and family for help and support too! We love you guys!!!

    Like

    Comment by Jessica | January 8, 2014 | Reply

  2. I follow your blog with every post. I have a 3 year old son with EoE and a feeding tube is possible in his future. My heart breaks for little Tinleigh but she has a strong mother and a great support network with her brother and family. I will be praying for your family and little Tinleigh this week! Sincerely,
    Erin-

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    Comment by Erin | January 8, 2014 | Reply

  3. Jacob enjoyed Color wonder markers, and coloring pages when he had his kidney tumor surgery at that age- we also brought his favorite movies, his CARS cars to play with while in bed, and games on my phone as well as some of his favorite movies [The Grinch cartoon!]. I cringe thinking about her pulling at the button- will they put in a elongated- pre-Mic-Key tube set up? or immediate Mic-Key? Just thinking about when Jacob almost partially pulled his out by mistake [Eek!]
    Sending you and your family lots of love!~Jenny

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    Comment by Jenny-FABlogcon | January 8, 2014 | Reply

  4. Absolutely thinking of all of you. I really appreciate that you have opened up your life and are sharing these experiences. As you know we are still new, but what I’m quickly learning is that we all need to stick together in this journey and support each other as best we can. Best of luck, Angie

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    Comment by Angie Bulkley | January 8, 2014 | Reply

  5. Talked to your Mom this week. Keeping all of you in our prayers.

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    Comment by Dianna vandeborne | January 8, 2014 | Reply

  6. thoughts and prayers are with your family – today , tomorrow and always. Love Dick and Lee Polomsky

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    Comment by wanda Polomsky | January 8, 2014 | Reply

  7. My prayers go out to that beautiful little girl, your boys and their SuperMom! Please try to let us know, but completely understood if you can’t. My thoughts will be with the both of you all day. Call if you need anything. Tracy

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    Comment by Tracy | January 8, 2014 | Reply

  8. Thinking of sweet Tinleigh and all of you! Hope all is going well today!
    Sending lots of love and hugs!!!

    Dawn

    Like

    Comment by Dawn | January 9, 2014 | Reply


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