With EoE, Allergies, Asthma and a G-Tube

Baby vs epi pen jr.

We finally used an epi pen jr.

Since last Tuesday Tinleigh has had us up in arms about her well being.

She woke up Tuesday morning with a red bumpy rash around her mouth. I blamed the pacifier right away. She only gets her pacifier in bed so I was hoping by the end of the day it would be gone. Not the case. That night at bedtime I put some cortisone cream around her mouth.

Wednesday she woke up and the rash was worse. So again i applied more cortisone and scrubbed her gah (paci). That day we also trailed her on fish for the first time. It seemed to go well.

Thursday the rash had spread more starting to go up her cheeks. I knew it wasn’t the fish but what in the world was it? I scrubbed her gah (paci) really good again. Once again we did another fist trial. This time she did have a slight cough about an hour into it but it just seemed a little flemy and nothing else happened. So we were on the fence about the fish. We also started her on omeprazole this day.

Friday she woke up with a bit of a dry cough. Her eyes were swollen and they were very red below. I was now concerned. It takes a lot to get me concerned at this phase of the game. We’ve dealt with a lot. Is it the fish? Is it the omeprazole? Is it her sinuses? We skipped the fish on friday. I called the allergist and she said try the fish again Saturday. We continued the omeprazole. I gave her benadryl once during the day to see if it would help her eyes. It didn’t. DSCN3485

Saturday she woke up  with the dry cough upon waking.  Her eyes were still swollen and now her face seemed swollen. We did let her have some fish. She only ate a few bites. She also had her omeprazole. Still no sign of a sinuses being stuffy and no cough while she was up and at it. So I did a bing search and found that facial swelling can be a reaction of the omeprazole. We decided Saturday would be her last dose of that. I had also given her a fruit bar popsicle I bought at Trader Joes. It was super messy and she loved it. (This comes back to haunt us)

Sunday she woke up and the rash was now only on her cheeks.  Her facial swelling seemed down but her eyes still had that swollen tired look. We didn’t give her fish or the omeprazole. That afternoon she did have another fruit bar popsicle. After eating it I wiped her down and put her shirt back on her. She came over to help me load the dishwasher immediately after she was done. I noticed she was digging at her neck. I wiped her off again and noticed she was getting blotchy on her chest. So I grabbed the benadryl and gave her some. I then pulled her clothes off to throw her in the tub to scrub her clean. Her entire belly was welting up. Right before my eyes I watched it climb up her neck onto her cheek and ears. She then coughed a super flemy cough and dry heaved. She was itching like crazy and coughing. Nathan just grabbed the epi pen as I positioned Tinleigh on my lap in the middle of the kitchen floor. We told Gage to leave the room and Nathan jabbed her little thigh. After the 10 seconds Nathan pulled the needle away.  I lost it a bit, it was like a smack of reality. He changed her poopy diaper and I ran to the restroom, grabbed my purse and out the door we headed to the ER. I of course forgot my phone. We arrived at the ER a short ride later and she was much better. We checked in and went right to a room. They basically kept an eye on her for an hour and gave her a dose of prednisolone. During our stay there Tineligh was like a light switch. She was either perfectly content and happy or a raging baby. I guess the adrenaline from the epi pen didn’t agree with her well. At one point she had thrown her spoon on the floor and I threw it away. Before I could ask for another one she made her way in a rage for the trash can. I scooped her up and she latched down on my shoulder with her tiny buck teeth and drew blood. I couldn’t believe it. I showed her and told her we don’t bite. It broke her heart she gave me a boo boo. She cried and cried. It was like a baby roller coaster of emotions.


There are no hospital pictures because I forgot my phone. Which, the camera phone is broken anyways because I dropped it in the toilet. I’ve had to go back to the olden ways of using my Nikon all the time again.

Once we got home she was starving. So I gave her a safe baby pouch of food. She instantly became gunky and coughing. I was starting to really freak out at this point. I was so worried the omeprazole had thrown her into some over active allergic reaction. So we gave her a pack of smarties and waited a little while until the cough seemed to stop then put her to bed with a big bottle of elemental formula. She coughed and coughed when we put her in bed. I was silently freaking out. She eventually fell asleep after maybe 15 minutes. She was worn out.

That brings us to today. She didn’t cough all night but woke up coughing and gagging horribly. Eyes still red but the swelling had gone down to almost nothing. I listened to her chest and she was very tight and wheezing. She had a breathing treatment. So now I’m wondering does she have bronchitis? Is this all related to a virus building up? I called the allergist to get her opinion and she said come in she will see us whenever we can get there. We arrived and I went through everything since last Tuesday. Here’s what we’ve come up with.

Stop the fish and omeprazole until this virus thing clears.

Find out if she’s ever had omeprazole before. Honestly we’ve gone through so much since moving I couldn’t remember what she’s had before.

The rash was probably the start of this virus.

Call the maker of the Popsicle and find out what else is processed in their facility that they didn’t list on the box. She either has a new allergy or got some unlisted cross-contamination.

The swelling of the eyes and face we’re not 100%. If she’s had omeprazole before then yes it could have been a reaction to it. If not then it might be from the virus.

Once the virus clears we can do fish again and see if she becomes gunky while eating it. If so then fish is done. If not then we keep going and after a week of that we can also try sweet and white potato. If she does react to the fish then we just move onto potatoes.

I called her old pediatrician in MO and found out that yes, last June Tinleigh had omeprazole. So I relayed that to the allergist and we will probably switch to lansoprazole. We have to get her on something though to get those bottom esophagus eosiniophils cleared up.

For today and tomorrow she has to continue the prednisolone because there is the chance of basically they call it a relapse of the allergy attack. So if you call me and hear a raging baby in the background it’s OK, it’s just Tinleigh. I will be wearing my suit of armor for the next three days as well to protect myself from my little piranha. DSCN3513

October 14, 2013 - Posted by | LIVING

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