LIVING

With EoE, Allergies, Asthma and a G-Tube

Since October

Blogging has been on my mind but not getting done. I’ve been thinking a lot about what has been going on and quite frankly I don’t know how I’m sane.

Since October we’ve had:

6 scopes – three bad, one better, one worse and one a little better but not enough.

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3 ER visits – 9 stitches, 102 fever with no walking with an added bonus kid fever while there and once for food impaction

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we’ve moved twice

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The boys are starting their third school this week. Charlie has been a Fighting Tiger, Purple Eagle and now a Blue Devil.

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Gage has had bacon and had it taken away. he’s also trialed rice and now blueberries

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Gage and Tinleigh have had skin prick alllergy testing twice and Charlie once.

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Tinleigh was diagnosed with EoE

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Tinleigh was already off of dairy but we also removed wheat, soy, chicken, beef, beans, potato, apple, fish, shellfish, eggs, tree nuts and peanuts and banana.

We removed Chicken from Charlie’s diet

We had Gage off of 26 foods. He was down to 36 pounds. chicken, turkey, beef, fish, shellfish, tree nuts, peanuts, dairy, wheat, celery, eggs, soy, rice, oats, pea, potato, sweet potato, apple, sesame, corn, mustard, deer, beans, hmmmmm what were those other two????

Gage got a feeding tube.

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We celebrated feeding tube awareness week for the first time.

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Gage now weighs 43 pounds.

Tinleigh turned one and has only gained two pounds since her one year check up, she’ll be 19 months this week.

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We started Tinleigh on drinking Gage’s feeding tube formula mixed with her rice milk.

Gage’s feeding tube formula wasn’t covered by insurance. It cost $40 a can. He drank a can a day. It took two months before we had coverage.

Gage was allergic to our new house and we had to scrub the entire house down before we could complete our move.

It took us one whole week to do our most recent move due to cleaning. During that week half our belongings were in one house while we slept in the other house.

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Gage’s feeding tube fell out.

In two months time Nathan used 5 epi pens on himself.

We’ve had asthma flares.

Charlie turned 7

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Tinleigh learned to walk.

I’ve had to transfer all mailing addresses twice.

We celebrated Halloween, Christmas and Easter trying to avoid food.

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Kids had to have physicals for new school.

I’ve had to find new doctors for everyone.

We had pet sea-monkeys. They died.

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I’ve had to find Gage a pre-k twice.

We did Gage’s 3 month tube change at home.

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Luckily I only had to pack the house for one of the moves but had to unpack both times.

We had snow

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Is this the end of the list? No, I know there’s been “minor” issues here and there also but they don’t stand out in my head. Then there’s the everyday things like laundry, running a household, keeping your kids and husband happy, finding things to cook for your allergic family, making multiple dinners every night so everyone can eat and I have to sleep. So these are the reasons my blog has been lagging. Maybe once this house is unpacked, we just finished the move last weekend, I will be able to get back into a blogging routine. That’s my hope anyways. We have so much going on right now with EoE I want to share!

April 28, 2013 Posted by | daily life, LIVING | 2 Comments

   

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