LIVING

With EoE, Allergies, Asthma and a G-Tube

Gage Update

Gage was scoped in December the same day as Charlie. We had tried to take Gage off his steroid when we took Charlie off his, but Gage started choking and coughing a lot so he went back on it. Before this scope we had removed wheat and oats from his diet because of his horrible bad scope in July. So we were really hoping there would be improvement.
It took a little longer than usual for the GI doctor to call me after their scopes so I called her. She gave me Charlie’s news with great enthusiasm. Her mood drastically changed when it was time to talk about Gage. Gage’s scope was still very bad and that is why she hadn’t called me. She didn’t know what to do and was trying to figure it out. His mid esophagus had 14 eosinophils and his distal was 54+ and there are fibrosis. Fibrosis is the hardening of the tissue which is what we are trying to avoid and the reason we do special diets trying to find the trigger foods. I got very upset. So it’s more than the wheat and oats that’s causing Gage’s issues. I told her that the only other food he’s eating that was removed before is corn. She reminded me that his patch test came back positive to pork and green beans. So after a long discussion she left it at we remove pork and green beans and keep him on his steroid twice a day. We’ll re-scope him in 3-4 months. At that time if he isn’t better, then we’ll remove corn. So Nathan and I had a talk that evening and we talked about why waiting to take out corn, because that eliminates a lot of everyday things for him. We then decided that we would let him try potatoes. If he did ok on potatoes then we would take out the corn. If he has a clean scope next time we know it’s probably pork, corn or green beans. If it’s a bad scope then we know it’s potatoes.
Gage is currently off the following foods:
Beef
eggs
soy
rice
seafood
peanuts and tree nuts
peas
mustard
celery
sesame
wheat
oats
corn
pork
green beans.
It’s tough. Although having potatoes allows him to have a few flour mixes and cake mixes he couldn’t previously have because of the potato starch. Now if he could just have rice our world would be so much easier.

January 17, 2012 - Posted by | Gage's allergies, LIVING | , , , , , , , , , , , , , , , , , ,

2 Comments »

  1. Gage’s diet sounds almost in line with my son Gavin’s. We had to take potatoes out, but rice is still in. I’d loose my mind with out it. You do Patch testing, would you say that they gave you the best indication for positives? Our allergist only does the skin prick testing and I’ve heard from a few families that their kids triggers would be negative up there, but when they moved to patch testing they showed up.

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    Comment by allergictotheamericandiet | March 24, 2012 | Reply

    • We originally started out with the prick test and that’s what we’ve been following. We had recently moved and had to get new doctors. that’s why we did the patch test. For our oldest, Charlie, it didn’t seem to be right. We’re currently keeping the foods away from Gage that showed up on the patch test because he’s still flared while on meds. I know at children’s in cinci they quit doing the patch test because they we’re accurate enough. I think just every single case is different. My niece has EoE and doesn’t test positive to anything! With the prick test we did have some false negatives. For example, Gage is highly allergic to peas but that always comes back negative. We also think that the only reason Charlie tested positive to so many foods is because he was flared up at the time of the prick test. He’s now eating 13 of the foods he tested positive to and none are effecting his throat and he’s not having any outward reactions. Allergies are so frustrating!!!

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      Comment by livingtheallergylife | March 27, 2012 | Reply


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