LIVING

With EoE, Allergies, Asthma and a G-Tube

Specialist

I am so excited! We got accepted into the EE specialist group in our area. Well, it’s a bit of a drive, but close enough!

The group consists of an allergist, a GI doctor and a nutritionist. We don’t go until September, but I am willing to wait. With the conflicting new blood test and scope results my head is starting to spin. I think a group of doctors actually working together would help ease my thoughts about what’s going on. Instead of one doctor doing one test, another doing the scope then they just sort of rely on each other to give good advice on what to do. I loved my doctors in Indiana and wish I could find a pair like them again. Hopefully this new group will be it!

June 26, 2011 Posted by | Charlie's allergies, Gage's allergies | , , , , | Leave a comment

Millet treats!

I found a bag of Millet puffs while at the stinky food store with Gage. I had never seen them in this form and figured I could do something with them. Once I got them home it hit me, Millet treats! Like rice crispy treats but using millet instead.

So this morning I made my first attempt at millet treats. I followed the basic rice crispy treat recipe and just added the millet when it called for Rice Crispies.

Charlie was so excited he could hardly wait for them to cool. So I let him lick off the spatula. He loved them! They were a bit chewy and reminded me of a popcorn texture. That led me to thinking maybe next I’ll try millet balls. Like popcorn balls.

A friend told me they do millet treats but with honey and peanut butter. Sad, we’re nut free. Those sound pretty darn good! Maybe someday.

June 26, 2011 Posted by | Charlie's allergies, Gage's allergies, What's for dinner | , , , , , , | 1 Comment

Chebe pizza

Good old Chebe. They haven’t changed it and Gage still loves it!  Good thing.

I made the boys pizza for dinner tonight. I pulled out a Boboli for Charlie and a box of Chebe pizza dough mix for Gage. It saddened me that I had to mix it up for him. Trying to see the positive though,  at least he can eat something similar to pizza.

I had forgotten that it called for eggs. That made me mad. Then I remembered we use the oil, water and baking powder mixture instead of egg. Works just about the same.

I made 4 little pizzas so that I could freeze 3 to have on hand when I need them.

I loaded up one little pizza with sauce, left over diced up chicken, mushrooms, black olives and cheese. I cut it into triangles just like Charlie’s pizza and Gage never even noticed his was different.

THANK YOU CHEBE!

June 26, 2011 Posted by | Gage's allergies, What's for dinner | , , , | 2 Comments

Blood tests and scopes

Both boys got their blood test results back from the microarray test. At first I was so excited! Charlie’s showed he was only allergic to Peaches and Kiwi. Charlie’s environmental came back positive to basically everything outside including mold, dust, cat and dog. He should probably be in a bubble. Gage’s food test showed only nuts, eggs and soy. His outdoor came back with a few grasses, russian thistle (tumble weeds when they’re alive) and cockroaches. Darn cockroaches. lol

So pure excitement ran through Nathan and I. The boys are doing better, we’re going to get to add just about everything back into their diets!

Then the questions ran through my head. What about the foods that Charlie has shown actual reactions to? The blisters on his lips when he eats mustard, the itchy mouth when he eats beef or the hives he gets when he touches any kind of melon? What about the foods that made Gage vomit, have diarrhea or hives?

Even more thoughts crossed my mind about the test and what the doctor had said about environmental allergies triggering Charlie’s EE. Charlie was tested the first time for EE in May of 2010. He was just scoped again June 7th. With his environmental allergies at their highest right now I would certainly think that his scope will come back positive. He’s been having throat clearing issues, lots of asthma attacks and swollen eyes. So certainly this will prove Charlie’s EE is environmental.

June 7th – Charlie’s scope day. Gage had been on an oral steroid for his asthma the week prior so he would not be scoped the same day as we usually do it. Charlie’s scope went great. Everything looked perfect and he had zero eosinophils in his esophagus. He did have a few in his duodenum but the doctor said a few there is normal. SUPER! However, this does not answer the question is Charlie’s EE caused by environmental allergens. Charlie’s allergies are so bad right now I expected his esophagus to be a mess. So I’m now very leery of the microarray test and what it has shown for Charlie. So we have started adding more foods back into Charlie’s diet. We started with beans. He LOVES lima beans and green beans. Nathan gave him a can of bean and bacon soup for lunch this weekend and Charlie ate half the can! Things are going great for Charlie.

June 21st – Gage’s scope day. Very bad news. Gage’s esophagus was very inflamed, had furrows and plaque. The doctor said the plaque could be a yeast infection from the medicine that sits on his esophagus every night. We would treat it with nystatin if it came back positive for yeast. She also said the plaque is very common with EE. Not sure yet what the result of that test is. We did get Gage’s eosinophil count – 49. That is the highest his has ever been. It’s actually as high as Nathan’s. Broke my heart. He hasn’t shown any outward reactions, nothing. I don’t have the rest of the results for his stomach and duodenum. Since Gage’s last scope in December that was clean we had added back wheat, oats and corn. We have now removed wheat and oats. My mom gut feeling has told me from the start that wheat is Gage’s trigger. I hate if I’m right. We are basically back to the beginning with Gage. He is off all foods we started with except corn. We really hope his next scope is clean so he can keep corn.

So that’s where we are now. The highs and lows off EE.

Nathan is not being scoped at this time. He is doing well enough he doesn’t feel like he needs to be seen. I’ll push him more this winter to get things checked out again.

June 26, 2011 Posted by | Charlie's allergies, Gage's allergies | , , , , , , , , | Leave a comment

   

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