LIVING

With EoE, Allergies, Asthma and a G-Tube

Things are looking up!

Since all three getting scope the beginning of Dec things are looking up!

Charlie: His biopsy came back a ZERO! Charlie got to add chicken, turkey and onion back in his diet.

Gage: He looked a little swollen but his biopsy came back a ZERO! Gage gets to add back a new food once a week starting with the least allergic. We’ll stop at the higher positive ones.

Both boys also reduced their meds to once a day at bedtime.

Nathan: He looked about 30%-40% better. His biopsy numbers dropped from 50-55 to 30 and 40. He hasn’t been taking his meds like he should and he sneaks in some foods he shouldn’t have. We’re happy with the improvement. He can swallow a tiny pill now with out chewing it up. It’s hard not to sneak in foods when you’re allergic to so many. He is going to try harder this next 6 months so he can see how good it feels to be normal! He said he feels normal now but he has ways to go to understand how “real” normal feels.

I am so grateful for our wonderful doctors and not making us suffer through a total elimination diet. They have definitely made dealing with this disease livable. It is still very hard at times to tell my kids they can’t have something specific to eat but it sure beats handing them a liquid drink and saying here’s dinner!

We’re even to the point that we can eat at Wendy’s! (with careful ordering) First time we’ve eaten out in the last 6 months.

January 7, 2011 - Posted by | Charlie's allergies, Gage's allergies, Nathan's allergies

3 Comments »

  1. I’m so glad I found your blog! My two sons have just been diagnosed with EE. They are 15 and 16. I can’t believe it has taken the doctors this long to identify the problem. My 15 year old is in remission at this time but my 16 year old in in dietary trials at the moment. (After allergy testing we can hardly find food for him to eat! He is a varsity baseball player and needs 4,000 calories to maintain his weight…he is so tired of me trying to make him eat…and finding things he can and WILL eat.) Do you have a blog list of EE blogs that you can share?

    Like

    Comment by DeeAnna | February 26, 2011 | Reply

    • I can only imagine how hard it is for you to find things to eat for two boys that age! I really hope we’re in remission once we get to that age. I do not have a list of blogs I follow. It’s hard for me to read about others over and over. It gets me down. i’m going to shoot you an email so we can talk more. I’m curious what they’re foods are they can’t have. I might be able to help you with some meals. My husband is a skinny guy with a hollow leg so I am always making meat, potato, veggie dinners. I would love to help you out, that’s why I’m doing this blog!

      Like

      Comment by mommyneedsabeer | March 21, 2011 | Reply

  2. Awesome!

    Like

    Comment by foodallergyfroggie | March 9, 2011 | Reply


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