LIVING

With EoE, Allergies, Asthma and a G-Tube

LIVING with a feeding tube

I want to share Gage’s past year living with a feeding tube in pictures. I don’t think there was anything he wasn’t able to do that he wanted to do.

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The big day. Going into surgery

We had Christmas shortly after

We had Christmas shortly after

Went through us moving to another state a month after surgery.

He went through us moving to another state a month after surgery.

Playing cowboy with his feeding book bag on

Playing cowboy with his feeding book bag on. Look at that tiny belly!

They ate snow

They ate snow

We saw some weird stuff come out of it. (fun dip)

We saw some weird stuff come out of it. (fun dip)

He could swing

He could swing

Play in the snow

Play in the snow. We’ve even gone sledding.

Got cool new t-shirts.

Got cool new t-shirts.

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Found some yummy rock candy he could have

Played in the ocean

Played in the ocean

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Was able to do mechanics work while feeding.

Was able to do mechanics work while feeding.

Played with play-doh

Painted Styrofoam Easter eggs

Instead of an Easter basket filled with candy he got cooking utensils. Cooking is a big thing for him.

Instead of an Easter basket filled with candy he got cooking utensils. Cooking is a big thing for him.

He could have sprite if we got fast food

He could have sprite if we got fast food

More allergy testing once he had a clear scope to figure out what we could add to his diet.

More allergy testing once he had a clear scope to figure out what we could add to his diet.

His button accidentally got pulled out and he had this horrible tube for a while before his new button arrived. We put in the button at home.

His button accidentally got pulled out and he had this horrible tube for a while before his new button arrived. We put in the button at home.

Drain the balloon holding it in on the inside.

Drain the balloon holding it in on the inside.

The hole

The hole

Putting the new button in.

Putting the new button in.

All done! What you don't 'get from the pictures is Tinleigh screaming in the background to be part of it. Charlie trying not to look but couldn't help it and was acting like he was going to puke.

All done! What you don’t’get from the pictures is Tinleigh screaming in the background to be part of it. Charlie trying not to look but couldn’t help it and was acting like he was going to puke.

He's been scoped clear three times with his button.

He’s been scoped clear three times with his button.

He turned five and HAD SAFE CAKE.

He turned five and HAD SAFE CAKE.

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Got to go to Chuck e cheese for his birthday. Had a feeding on the go

Got to go to Chuck e cheese for his birthday. Had a feeding on the go

Graduated Pre-K

Graduated Pre-K

Picked strawberries

Picked strawberries

Played in the sprinkler

Played in the sprinkler

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Shot his bow

Shot his bow

Somehow managed to become even more handsome.

Somehow managed to become even more handsome.

Helped vacuum cars

Helped vacuum cars

Was an artist for a day

Was an artist for a day

Has worked his way up to a plate of food!

Has worked his way up to a plate of food!

Figured out a way for him to have Popsicles!

Figured out a way for him to have Popsicles!

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Got very muddy

Got very muddy

Took part in a lowes building class

Took part in a lowes building class

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Hit off a golf ball at the start of his cousin Ellie's Par-tee for CURED.

Hit off a golf ball at the start of his cousin Ellie’s Par-tee for CURED.

Took part in the giant slip n slide

Took part in the giant slip n slide

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More scopes

More scopes

Took some gymnastics classes

Took some gymnastics classes

Scared the crap out of me

Scared the crap out of me

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Went exploring with Charlie

Went exploring with Charlie

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Picked out and carved pumpkins

Picked out and carved pumpkins

Went trick or treating

Went trick or treating

Got his favorite thing ever. A Benik belt. Protects his tube from being pulled out.

Got his favorite thing ever. A Benik belt. Protects his tube from being pulled out.

Went to the zoo and was hooked up

Went to the zoo and was hooked up

Fed birds

Fed birds

Got a cyst

Got a cyst

Got button patches

Got button patches

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Swam at friends houses

Swam at friends houses

Played outside like a boy!

Played outside like a boy while hooked up!

Got his button pulled out again

Got his button pulled out again

Started kindergarten

Started kindergarten

Wiped out on his scooter

Wiped out on his scooter

Had a bowl of cereal!

Had a bowl of cereal!

Played with his lizard

Played with his lizard

Ate a meal with Charlie!

Ate a meal with Charlie!

Did a fish trial

Did a fish trial

Had a very scarey episode of the flu

Had a very scarey episode of the flu

We have our moments. He asks when he will get it out. He always talks about wanting bacon, tacos and hotdogs. I always assure him we’ll eventually get there. He never throws a fit about not being able to eat something. Sometimes he does cry though. He’s healthy and thriving now. Packed on 11 pounds and is high on the charts for his height and weight, just like when he was a baby. I still have a love/hate relationship with the button, but seeing how healthy he is tends to make me forget how much I hate him having to have it.

You rocked a year with your button Gage! Here’s to another year and adding more food to your diet so we can get rid of it!!

December 5, 2013 - Posted by | Gage's allergies, LIVING | , , , , ,

1 Comment »

  1. Great information on Gage. You all are troopers! So nice to get updates. Keep all of you in my prayers daily.

    Comment by Dianna vandeborne | December 5, 2013 | Reply


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